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IEMbase 0791: AK1-related adenylate kinase 1 deficiency

Scope

Field Value
IEMbase ID 791
Nosology 16.2.13.01
Nosology code IEM0019
Gene AK1
External IDs OMIM:612631; ORPHA:86817
Generated mapping UNMAPPED
Candidate DisMech targets No exact local target; reject Adenosine_Kinase_Deficiency.yaml neighbor
Review date 2026-07-11

IEMbase phenotype signal

IEMbase labels this autosomal recessive record as AK1-related adenylate kinase 1 deficiency, with alternate name hemolytic anemia due to adenylate kinase deficiency. The signal includes very low RBC adenylate kinase activity, non-spherocytic hemolytic anemia with basophilic stippling, basophilic stippling as a smear finding, and possible psychomotor delay.

DisMech phenotype coverage

No exact DisMech target was found. Local hemolytic-anemia entries cover many other etiologies, and Lead_Poisoning.yaml includes basophilic stippling and acquired pyrimidine 5'-nucleotidase effects, but those are not AK1 deficiency. The generated adenosine kinase deficiency neighbor is an enzyme-name/purine metabolism neighbor, not a match.

Concordance and completeness

Judgement: true local gap.

The local knowledge base lacks AK1, adenylate kinase 1 activity, and the specific inherited nonspherocytic hemolytic anemia phenotype. General hemolytic anemia, lead toxicity, or adenosine kinase deficiency should not be used as coverage.

Curation actions

  • Keep IEMbase 0791 unmapped.
  • Reject Adenosine_Kinase_Deficiency.yaml, lead poisoning, and generic hemolytic anemia entries as exact coverage.
  • Future curation should preserve RBC adenylate kinase activity, basophilic stippling, nonspherocytic hemolytic anemia, and the possible psychomotor delay prompt.