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IEMbase 0038: ALDH4A1-related pyrroline-5-carboxylate dehydrogenase deficiency

Scope

Field Value
IEMbase ID 38
Nosology 1.7.06.01
Gene ALDH4A1
External IDs OMIM:239510
Generated mapping UNMAPPED; best fuzzy candidate Pyruvate_Dehydrogenase_Deficiency.yaml
Candidate DisMech targets none currently valid
Review date 2026-07-07

IEMbase phenotype signal

IEMbase represents ALDH4A1 deficiency as pyrroline-5-carboxylate dehydrogenase deficiency, also called hyperprolinemia type 2. The biochemical signal is high plasma proline, high urinary proline, increased urinary pyrroline-5-carboxylate, variable-to-markedly increased urinary 4-hydroxyproline, and normal plasma 4-hydroxyproline.

The clinical signal is sparse and uncertain: possible febrile seizures, possible pharmacoresistant seizures, and possible intellectual disability. Treatability is marked yes, but no treatment rows are present in the cached record.

DisMech phenotype coverage

There is no current DisMech entry or subtype for ALDH4A1-related hyperprolinemia type 2. The generated fuzzy candidate, Pyruvate_Dehydrogenase_Deficiency.yaml, should be rejected. PDH deficiency is a mitochondrial pyruvate-to-acetyl-CoA disorder with lactate/pyruvate accumulation and neurodevelopmental disease, not a proline catabolism disorder with elevated proline and P5C.

ALDH18A1-related P5CS deficiency is also not a match. It impairs proline and ornithine biosynthesis and tends toward low or low-normal proline, whereas ALDH4A1 deficiency blocks proline degradation and produces hyperprolinemia.

Concordance and completeness

Judgement: generated unmapped status is correct; the PDH candidate is a false positive.

IEMbase provides a biochemical target profile for future curation but only weak clinical signal. The most important distinction to preserve is hyperprolinemia type 2 with elevated P5C, not generic seizure disease and not ALDH18A1 P5CS deficiency.

Curation actions

  • Do not map this record to PDH deficiency or ALDH18A1 deficiency.
  • Consider future curation only if the proline-catabolism work package becomes a priority.
  • If curated, anchor the entry on elevated plasma/urinary proline and urinary P5C, with seizures and intellectual disability treated as uncertain or variable clinical associations unless supported by stronger evidence.