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IEMbase 0788: AMPD2-related pontocerebellar hypoplasia 9

Scope

Field Value
IEMbase ID 788
Nosology 16.2.05.01
Nosology code IEM0011
Gene AMPD2
External IDs OMIM:615809; OMIM:615686; ORPHA:401805
Generated mapping CANDIDATE; Pontocerebellar_Hypoplasia.yaml subtype PCH2
Candidate DisMech targets No exact local AMPD2/PCH9 target
Review date 2026-07-11

IEMbase phenotype signal

IEMbase labels this autosomal recessive record as AMPD2-related adenosine monophosphate deaminase deficiency, with alternate name pontocerebellar hypoplasia type 9 (severe) and abbreviation PCH9. The phenotype signal includes microcephaly, seizures, psychomotor delay or retardation, dysmorphic features, midface hypoplasia, broad nasal bridge, short upper lip, and abnormally shaped ears.

DisMech phenotype coverage

Pontocerebellar_Hypoplasia.yaml is a broad PCH entry with several curated subtypes, including VRK1/PCH1A, EXOSC3/PCH1B, TSEN54/PCH2 and PCH4, RARS2/PCH6, and CLP1/PCH10. It does not include AMPD2 or PCH9 as a subtype.

Concordance and completeness

Judgement: candidate rejected; true local subtype gap.

The generated PCH2 match is a fuzzy alias match to the PCH series rather than a correct AMPD2/PCH9 match. The broader PCH entry provides useful group context for pontocerebellar hypoplasia, but it cannot be treated as exact coverage for AMPD2-related PCH9.

Curation actions

  • Do not accept the generated PCH2 candidate as exact coverage.
  • Keep IEMbase 0788 as a local gap unless AMPD2/PCH9 is added to the PCH entry or curated as a separate disease.
  • Future curation should preserve AMPD2, PCH9, microcephaly, seizures, psychomotor delay, and the dysmorphic craniofacial prompts.