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IEMbase 0630: PGAP1-related GPI deacylase deficiency

Scope

Field Value
IEMbase ID 630
Nosology 18.3.00.19
Gene PGAP1
External IDs OMIM:615802; ORPHA:88616
Generated mapping UNMAPPED
Candidate DisMech targets None
Review date 2026-07-07

IEMbase phenotype signal

IEMbase represents PGAP1-related GPI deacylase deficiency / PGAP1-CDG / autosomal recessive mental retardation 42 as an autosomal recessive disorder with unknown treatability and no treatment rows.

The cached record has no biochemical rows. Clinical and characteristic rows focus on early neurodevelopmental disease: abnormal hand morphology, optional apnea, brain atrophy on MRI, delayed myelination, hypotonia, movement disorder, high arched eyebrows, large mouth, prominent forehead, short neck, epilepsy, facial dysmorphism, and intellectual disability.

DisMech phenotype coverage

No exact PGAP1-related GPI deacylase deficiency entry was identified. PGAP1 appears in local chromosome 2q32-q33 deletion syndrome content as one gene within a larger deleted interval, but that chromosomal-deletion context is not the same as biallelic PGAP1-related impaired GPI-anchor maturation.

Concordance and completeness

Judgement: true local gap.

This record belongs with the neighboring GPI-anchor biosynthesis/maturation defects but needs its own disease or subtype-level anchor because the causal gene, proximal GPI deacylase step, and phenotype pattern are distinct.

Curation actions

  • Curate PGAP1-related GPI deacylase deficiency separately from chromosome 2q32-q33 deletion syndrome.
  • Preserve neurodevelopmental, epilepsy, MRI brain atrophy, delayed myelination, hypotonia, movement-disorder, apnea, hand, and facial-feature prompts during source review.