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IEMbase 0246: GNS-related N-Acetylglucosamine 6-sulfatase deficiency

Scope

Field Value
IEMbase ID 246
Nosology 20.2.06.01
Gene GNS
External IDs OMIM:252940; ORPHA:79272
Generated mapping MAPPED; Sanfilippo_syndrome.yaml#MPS IIID
Candidate DisMech targets Sanfilippo_syndrome.yaml#MPS IIID
Review date 2026-07-07

IEMbase phenotype signal

IEMbase represents this as GNS-related N-acetylglucosamine 6-sulfatase deficiency, with alternate labels Sanfilippo D disease, mucopolysaccharidosis type 3D, and MPS IIID. The record is autosomal recessive and treatability is marked yes, with no treatment rows in the cached JSON.

Biochemical rows include decreased N-acetylglucosamine-6-sulfatase activity in white blood cells, increased urinary heparan sulfate, and increased total glycosaminoglycans. Clinical rows include Alder-Reilly anomaly, coarse facial features, dysostosis multiplex, hearing loss, liver dysfunction, and neurologic regression. Characteristic rows include aggressive behavior, diarrhea, hyperactivity, intellectual disability, seizures, and swallowing difficulties.

DisMech phenotype coverage

Sanfilippo_syndrome.yaml#MPS IIID is the correct local target. The local file has subtype coverage for GNS-related Sanfilippo syndrome type D/ N-acetylglucosamine-6-sulfatase deficiency and covers the shared Sanfilippo mechanism of autosomal recessive heparan sulfate catabolic failure, lysosomal heparan sulfate accumulation, progressive neurodegeneration, intellectual disability, developmental regression, behavioral problems, hyperactivity, seizures, swallowing and feeding difficulty, hearing and visual impairment, and mild systemic MPS features.

Concordance and completeness

Judgement: correct subtype-level mapping with high concordance.

IEMbase and DisMech agree on GNS/MPS IIID identity, deficient N-acetylglucosamine-6-sulfatase activity, heparan sulfate storage, total GAG elevation, neurologic regression, intellectual disability, behavioral disease, seizures, swallowing difficulty, hearing involvement, and systemic MPS features. IEMbase provides a compact per-subtype checklist for enzyme testing and several systemic findings.

Curation actions

  • Keep this record mapped to Sanfilippo_syndrome.yaml#MPS IIID.
  • No mapping correction is needed.
  • Use IEMbase's subtype-specific enzyme and phenotype rows as enrichment prompts for future Sanfilippo review.