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IEMbase 0259: FUCA1-related Alpha-L-fucosidase deficiency

Scope

Field Value
IEMbase ID 259
Nosology 20.3.06.01
Gene FUCA1
External IDs OMIM:230000; ORPHA:349
Generated mapping MAPPED; Fucosidosis.yaml
Candidate DisMech targets Fucosidosis.yaml
Review date 2026-07-07

IEMbase phenotype signal

IEMbase represents this as FUCA1-related alpha-L-fucosidase deficiency, with alternate labels alpha-fucosidosis and FUCO. The record is autosomal recessive and treatability is marked unknown.

The treatment section lists hematopoietic stem cell transplant as a stem-cell strategy with level 4 evidence and PMID 28238202. Biochemical rows include decreased alpha-L-fucosidase activity in fibroblasts and white blood cells, plus increased urinary fucose. Clinical rows include angiokeratoma, foam cells, sweating, and vacuolated lymphocytes.

DisMech phenotype coverage

Fucosidosis.yaml is the correct local target. The local entry covers biallelic FUCA1 pathogenic variants, alpha-L-fucosidase deficiency, storage of fucose-containing glycoproteins, glycolipids, and oligosaccharides, urinary fucose-rich oligosaccharides and glycopeptides, developmental delay or regression, severe intellectual disability, coarse facial features, dysostosis multiplex, hepatomegaly, hyperhidrosis, dermatologic and vascular skin abnormalities, hearing impairment, spasticity, seizures, progressive neurologic deterioration, type I and type II subtypes, supportive care, transplant, and intracisternal enzyme replacement as experimental context.

Concordance and completeness

Judgement: correct mapping with high concordance.

IEMbase and DisMech agree on FUCA1/fucosidosis identity, autosomal recessive inheritance, reduced alpha-L-fucosidase activity, fucose-rich urinary substrate signal, angiokeratoma/vascular skin disease, sweating/hyperhidrosis, neurologic storage disease, and transplant as a reported intervention. DisMech is broader for systemic and neurologic manifestations, while IEMbase adds compact cellular morphology prompts for foam cells and vacuolated lymphocytes.

Curation actions

  • Keep this record mapped to Fucosidosis.yaml.
  • No mapping correction is needed.
  • Use IEMbase's foam-cell and vacuolated-lymphocyte rows as enrichment prompts during future fucosidosis phenotype review.