Skip to content

IEMbase 0613: TMEM165-related congenital disorder of glycosylation

Scope

Field Value
IEMbase ID 613
Nosology 18.4.08.02
Gene TMEM165
External IDs OMIM:614727; OMIM:614726; ORPHA:314667
Generated mapping CANDIDATE; ALG12_Congenital_Disorder_of_Glycosylation.yaml
Candidate DisMech targets None exact
Review date 2026-07-07

IEMbase phenotype signal

IEMbase represents TMEM165-CDG / CDG-IIk as an autosomal recessive disorder marked treatable, although the cached record has no treatment rows. Biochemical rows include increased type II sialotransferrins, increased ASAT/ALAT, and increased plasma creatine kinase.

Clinical and characteristic rows emphasize psychomotor delay, muscle weakness, failure to thrive, fever, obesity, osteoporosis, severe growth retardation, growth hormone deficiency, skeletal abnormalities, hepatomegaly, joint laxity, dysmorphic features, and midface hypoplasia.

DisMech phenotype coverage

ALG12_Congenital_Disorder_of_Glycosylation.yaml is a false-positive CDG-class candidate. ALG12-CDG is an ER lipid-linked oligosaccharide assembly disorder, whereas TMEM165-CDG is a Golgi cation/homeostasis and type II glycosylation processing disorder with distinctive skeletal/growth biology.

No exact TMEM165-CDG target was identified locally.

Concordance and completeness

Judgement: true local gap; reject ALG12-CDG as exact coverage.

The treatability flag should be source-reviewed before curation, since the cached disorder row marks the disease treatable but has no treatment rows.

Curation actions

  • Create or identify an exact TMEM165-CDG target before import.
  • Reject ALG12_Congenital_Disorder_of_Glycosylation.yaml as an exact mapping.
  • Preserve type II sialotransferrin, CK/transaminase, growth hormone, skeletal, osteoporosis, hepatomegaly, joint-laxity, and treatability-review prompts.