Selective IgA Deficiency

Complex MONDO:0001341 Pathograph 10 Show in embeddings browser Primary Immunodeficiency Antibody Deficiency Disorder

Selective IgA deficiency (SIgAD) is defined as a serum IgA below 7 mg/dL (0.07 g/L) with normal serum IgG and IgM in an individual older than four years, other causes of hypogammaglobulinemia having been excluded. The four-year threshold avoids diagnosing the physiological delay in IgA ontogeny seen in younger children. SIgAD is the most common primary antibody deficiency, with a prevalence of roughly 1:600 in populations of European ancestry; the frequency is strongly ancestry-dependent and is one to two orders of magnitude lower in East Asian populations. The great majority of affected individuals — on the order of 85-90% — are asymptomatic and are identified incidentally, for example during blood donation or celiac serology. Symptomatic patients present with recurrent sinopulmonary and gastrointestinal infections, and the diagnosis carries strong associations with celiac disease, other autoimmune conditions, atopy, and — in the subset who develop anti-IgA antibodies — anaphylactic reactions to IgA-containing blood products. A minority of patients, particularly those with concomitant IgG subclass deficiency or autoimmunity, progress to common variable immunodeficiency, and SIgAD and CVID are widely regarded as lying on a single disease spectrum. SCOPE: there is no single causal gene. SIgAD is a genetically complex, usually sporadic condition whose largest genetic risk factor is the HLA region, with additional common non-HLA risk alleles and heterozygous TNFRSF13B (TACI) variants that act as disease-modifying rather than disease-causing.

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1
Inheritance
7
Pathophys.
10
Phenotypes
2
Gaps
10
Pathograph
5
Genes
5
Medical Actions
3
Differentials
13
References
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Classifications

Harrison's Part
IMMUNE RHEUMATOLOGIC
IUIS Category
predominantly antibody deficiency
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Inheritance

1
Polygenic inheritance HP:0010982
SIgAD does not follow a Mendelian pattern. Familial clustering occurs, but inheritance is complex: the dominant genetic risk factor is the HLA region (principally the HLA-B*0801-DRB1*0301-DQB1*02 8.1 haplotype and the DRB1*0701-DQB1*02 haplotype), with additional common non-HLA risk alleles at IFIH1, PVT1, ATG13-AMBRA1, AHI1 and CLEC16A, and heterozygous TNFRSF13B variants acting as modifiers.
Polygenic inheritance
Show evidence (2 references)
PMID:22291608 SUPPORT Human Clinical
"The polygenic nature of IgAD is underscored by the recent identification of several new risk genes in a genome-wide association study."
States directly that IgAD is polygenic rather than Mendelian.
PMID:27723758 SUPPORT Human Clinical
"These data suggest that a complex network of genetic effects, including genes known to influence the biology of IgA production, contributes to IgAD."
The GWAS meta-analysis concludes that a complex, multi-locus genetic architecture underlies IgAD.
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Discussions and Knowledge Gaps

2
What converts HLA class II haplotype risk into a block on terminal differentiation of IgA-committed B cells?
KNOWLEDGE GAP sigad_hla_to_differentiation_block
HLA is the largest measured genetic risk factor for SIgAD and the GWAS loci are largely shared autoimmunity alleles, but no source connects either to the observed maturation arrest. The pathophysiology chain in this entry is therefore intact from the differentiation block onward and open upstream of it. Two further facts sharpen the gap: IL-21 restores IgA production from these B cells ex vivo, so the block is not irreversible, and 85-90% of people meeting the biochemical definition never develop disease, so whatever the mechanism is, it is not sufficient for clinical illness.
Why are the large majority of individuals with absent serum IgA asymptomatic?
KNOWLEDGE GAP sigad_asymptomatic_majority
Two candidate explanations are on record and neither is settled. Serum IgA is measured and secretory IgA is not, so some individuals classified as IgA-deficient may retain protective mucosal IgA; and compensatory secretory IgM is increased in most but not all IgA-deficient patients. Resolving this would also explain why the same biochemical finding is incidental in a blood donor and disabling in a patient with bronchiectasis.

Pathophysiology

7
Failure of Terminal B Cell Differentiation to IgA-Secreting Plasma Cells
The core defect in SIgAD is a maturation arrest at the last step of the IgA lineage. B cell numbers are normal and IgA-committed B cells are present and surface-IgA positive, but they retain an immature phenotype co-expressing IgM and IgD and do not complete terminal differentiation into IgA-secreting plasma cells. The block is intrinsic enough to be transferred with hematopoietic stem cells. Whether it reflects a B-cell-intrinsic defect, a T-helper or cytokine-environment defect, or several of these in different patients, is unresolved; IL-21 can restore IgA production from these B cells ex vivo, which places the block downstream of an inducible signal rather than at an irreversible lesion.
IgA-committed B cell CL:0000236 Cell Ontology (CL) Relation: this pathophysiological event involves this cell type This pathophysiological event involves IgA-committed B cell, annotated with B cell (CL:0000236). CL:0000236 is a cell type from the Cell Ontology. IgA plasma cell CL:0000987 Cell Ontology (CL) Relation: this pathophysiological event involves this cell type This pathophysiological event involves IgA plasma cell (CL:0000987). CL:0000987 is a cell type from the Cell Ontology.
plasma cell differentiation GO:0002317 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves decreased plasma cell differentiation (GO:0002317). GO:0002317 is a biological process from the Gene Ontology. ↓ DECREASED isotype switching to IgA isotypes GO:0048290 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves decreased isotype switching to IgA isotypes (GO:0048290). GO:0048290 is a biological process from the Gene Ontology. ↓ DECREASED
Show evidence (4 references)
PMID:20101521 SUPPORT Human Clinical
"In IgA deficiency, B cells express IgA; however, they are of immature phenotype with the coexpression of IgM and IgD, and they cannot fully develop into IgA-secreting plasma cells"
States the maturation-arrest mechanism precisely: IgA-expressing B cells are present but cannot complete differentiation into plasma cells.
PMID:27723758 SUPPORT Human Clinical
"In IgAD, B cells fail to terminally differentiate into IgA+ plasma cells"
Independent statement of the same terminal-differentiation block.
PMID:27763681 SUPPORT Human Clinical
"Pathogenesis of SIgAD is still unknown; however, a defective terminal differentiation of B cells and defect in switching to IgA-producing plasma cells are presumed to be responsible."
Review supports the differentiation/class-switch block while making clear that the upstream cause remains unknown.
+ 1 more reference
Intact Immunoglobulin Heavy Chain Alpha Loci
The constant-region alpha-1 and alpha-2 heavy chain genes on chromosome 14 are structurally normal in the great majority of patients. Deletions of the heavy chain constant-region cluster do exist but are rare and are a separate IUIS entity; where they occur, the associated deficiencies extend beyond IgA to IgG2, IgG4 and IgE. This node exists to record a negative that constrains the mechanism: SIgAD is a regulatory/differentiation failure, not a structural loss of the genes encoding IgA, which is why no single causal gene is curated for this disease.
immunoglobulin receptor binding GO:0034987 Gene Ontology (GO) Relation: this pathophysiological event involves this molecular function This pathophysiological event involves immunoglobulin receptor binding (GO:0034987). GO:0034987 is a molecular function from the Gene Ontology.
Show evidence (1 reference)
PMID:20101521 SUPPORT Human Clinical
"The constant α1 and α2 genes are generally normal except for rarely described cases of heavy chain gene deletions involving various segments on chromosome 14"
Establishes that the IgA heavy-chain constant-region loci are intact in typical SIgAD, excluding a structural gene defect as the general mechanism.
Absent Serum and Secretory IgA
Serum IgA falls below 7 mg/dL (0.07 g/L) with normal IgG and IgM, and the dimeric secretory IgA normally transported across mucosal epithelium by the polymeric immunoglobulin receptor is correspondingly reduced. Serum IgA is what is measured clinically; secretory IgA is not, and residual mucosal IgA in some patients is one of the proposed explanations for the asymptomatic majority. A compensatory increase in secretory IgM is seen in most, but not all, IgA-deficient individuals.
mucosal epithelial cell CL:0002563 Cell Ontology (CL) Relation: this pathophysiological event involves this cell type This pathophysiological event involves mucosal epithelial cell, annotated with intestinal epithelial cell (CL:0002563). CL:0002563 is a cell type from the Cell Ontology.
immunoglobulin production in mucosal tissue GO:0002426 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves decreased immunoglobulin production in mucosal tissue (GO:0002426). GO:0002426 is a biological process from the Gene Ontology. ↓ DECREASED polymeric immunoglobulin receptor-mediated transcytosis of secretory IgA GO:0002415 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves decreased polymeric immunoglobulin receptor-mediated transcytosis of secretory IgA, annotated with immunoglobulin transcytosis in epithelial cells mediated by polymeric immunoglobulin receptor (GO:0002415). GO:0002415 is a biological process from the Gene Ontology. ↓ DECREASED
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"In general, serum IgA level of less than 7 mg/dL (0.07 g/L) is considered as selective IgA deficiency since this concentration is the lowest detectable limit established by most of the laboratories."
Gives the biochemical threshold that defines this node.
PMID:20101521 SUPPORT Human Clinical
"in most IgA-deficient patients, seemingly as a compensatory mechanism, production of secretory IgM is increased"
Documents the compensatory secretory-IgM response that partly offsets the loss of secretory IgA.
Impaired Mucosal Immune Exclusion
Loss of secretory IgA at respiratory and gastrointestinal surfaces permits increased epithelial adherence and penetration by bacteria and protozoa, and increased translocation of intact macromolecules across the mucosal barrier. Both consequences matter: the first drives the infectious phenotype, the second is a plausible route by which food and microbial antigens reach the submucosal immune system in quantity.
intestinal epithelial cell CL:0002563 Cell Ontology (CL) Relation: this pathophysiological event involves this cell type This pathophysiological event involves intestinal epithelial cell (CL:0002563). CL:0002563 is a cell type from the Cell Ontology.
mucosal immune response GO:0002385 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves decreased mucosal immune response (GO:0002385). GO:0002385 is a biological process from the Gene Ontology. ↓ DECREASED defense response to bacterium GO:0042742 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves decreased defense response to bacterium (GO:0042742). GO:0042742 is a biological process from the Gene Ontology. ↓ DECREASED
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"Since the protective barrier of the gastrointestinal system is impaired in IgA deficiency, protozoa such as Giardia lamblia can adhere to the epithelium, proliferate, and cause infection"
Concrete instance of failed mucosal exclusion in the gut.
PMID:20101521 SUPPORT Human Clinical
"Even in the absence of infection, some molecules may enter the subepidermal and submucosal tissue because of the impaired mucosal clearance of macromolecules and proteins."
Supports the second, non-infectious consequence of failed exclusion: increased antigen translocation across the mucosa.
Immune Dysregulation and Autoimmunity
SIgAD carries a markedly increased burden of autoimmune disease, most strikingly celiac disease (about 35-fold) and type 1 diabetes (about 10-fold), and also juvenile idiopathic arthritis, SLE, inflammatory bowel disease, thyroid disease and rheumatoid arthritis. The GWAS evidence points at a shared genetic basis rather than a purely downstream consequence: IgAD risk loci are significantly enriched for established autoimmunity loci, and the dominant HLA haplotype is the same 8.1 haplotype that confers risk for several of these conditions. Autoantibodies are detectable in IgA-deficient individuals without overt clinical autoimmune disease.
B cell CL:0000236 Cell Ontology (CL) Relation: this pathophysiological event involves this cell type This pathophysiological event involves B cell (CL:0000236). CL:0000236 is a cell type from the Cell Ontology.
adaptive immune response GO:0002250 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves abnormal adaptive immune response (GO:0002250). GO:0002250 is a biological process from the Gene Ontology. ⚠ ABNORMAL
Show evidence (2 references)
PMID:24584841 SUPPORT Human Clinical
"Individuals with IgA deficiency more often had celiac disease (6.7 % vs. 0.19 % in controls) and type 1 diabetes (5.9 % vs. 0.57 %) corresponding to a 35-fold higher PR for celiac disease and 10-fold higher for type 1 diabetes."
Quantifies the two strongest autoimmune associations in a nationwide matched cohort of 2100 IgA-deficient individuals.
PMID:20694011 SUPPORT Human Clinical
"These findings support the hypothesis that autoimmune mechanisms may contribute to the pathogenesis of IgAD."
GWAS enrichment of autoimmunity loci in IgAD supports a shared immune-dysregulation basis rather than a purely secondary association.
HLA Class II Haplotype Susceptibility
The HLA region is the largest genetic risk factor for SIgAD. High-density SNP mapping and HLA imputation across three European populations place the primary signal at HLA-DQB1*02, arising from the independent effects of the HLA-B*0801-DRB1*0301-DQB1*02 and DRB1*0701-DQB1*02 haplotypes, with a secondary risk signal at DRB1*0102 and a strongly protective effect of DRB1*1501. Risk is conferred by the common extended 8.1 haplotype acting multiplicatively rather than by a single distinct SIgAD haplotype. Because the same haplotype confers risk for celiac disease and type 1 diabetes, this node is also the most economical explanation available for part of the autoimmune association.
Show evidence (3 references)
PMID:22291608 SUPPORT Human Clinical
"Among the characterized susceptibility loci, the association with specific HLA haplotypes represents the major genetic risk factor for IgAD."
States that HLA is the dominant genetic risk factor for IgAD.
PMID:22291608 SUPPORT Human Clinical
"resulting from the combined independent effects of the HLA-B*0801-DRB1*0301-DQB1*02 and -DRB1*0701-DQB1*02 haplotypes"
Identifies the two specific risk haplotypes underlying the primary HLA-DQB1*02 signal.
PMID:20101521 SUPPORT Human Clinical
"IgA deficiency is not associated with a distinct haplotype; rather, the risk is conferred by the common extended MHC haplotype HLA A1, B8, DR3, and DQ2 (the 8.1 haplotype) acting in a multiplicative manner"
Supports the specific claim that risk comes from the common 8.1 haplotype rather than a SIgAD-specific one.
Anti-IgA Alloimmunization
A subset of IgA-deficient individuals develop antibodies against IgA. On exposure to IgA-containing blood products these can precipitate an anaphylactic transfusion reaction; the antibody capable of a type I hypersensitivity reaction is of IgE isotype, although IgG anti-IgA is what is routinely measured. Roughly one third of severely IgA-deficient individuals carry detectable anti-IgA, and a comparable proportion was found among Japanese as among European-ancestry IgA-deficient donors. The predictive value of a positive test in someone who has never reacted is low, so the finding drives product selection rather than a diagnosis.
immunoglobulin production GO:0002377 Gene Ontology (GO) Relation: this pathophysiological event involves this biological process This pathophysiological event involves immunoglobulin production (GO:0002377). GO:0002377 is a biological process from the Gene Ontology.
Show evidence (3 references)
PMID:15679454 SUPPORT Human Clinical
"The test methods used to establish the diagnosis of IgA deficiency and identify the approximately one third of these individuals with anti-IgA are discussed"
Quantifies the proportion of IgA-deficient individuals carrying anti-IgA antibodies.
PMID:3485858 SUPPORT Human Clinical
"Anti-IgA antibodies were found in 3 (25.0%) of 12 IgA-deficient blood donors whose IgA levels were less than 5 mg/dl, a prevalence rate comparable to that in donors of European ancestry."
Shows anti-IgA alloimmunization occurs at a similar rate across ancestries even though SIgAD frequency itself differs sharply.
PMID:15679454 SUPPORT Human Clinical
"in populations of IgA-deficient individuals screened for anti-IgA, the predictive value of the test in the absence of a prior reaction is quite low"
Supports the caveat that a positive anti-IgA screen does not by itself predict a reaction.

Pathograph

Use the checkboxes to hide or show graph categories. Hover nodes for evidence and cross-linked metadata.
Pathograph: causal mechanism network for Selective IgA Deficiency Interactive directed graph showing how pathophysiology mechanisms, phenotypes, genetic factors and variants, experimental models, environmental triggers, and treatments relate through causal and linked edges.

Phenotypes

10
Blood 1
Absent or Markedly Reduced Serum IgA OBLIGATE Decreased circulating IgA concentration HP:0002720 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Decreased circulating IgA concentration (HP:0002720). HP:0002720 is a phenotype from the Human Phenotype Ontology.
Show evidence (1 reference)
PMID:20101521 SUPPORT Human Clinical
"Immunoglobulin (Ig) A deficiency (OMIM 137100) is defined as decreased or absent level of serum IgA in the presence of normal serum levels of IgG and IgM in a patient older than 4 years of age, in whom other causes of hypogammaglobulinemia have been excluded"
The diagnostic definition, including the normal IgG/IgM requirement and the four-year age threshold.
Digestive 2
Gastrointestinal Infections Frequent Giardia lamblia infestation HP:0005215 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Frequent Giardia lamblia infestation (HP:0005215). HP:0005215 is a phenotype from the Human Phenotype Ontology.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"Since the protective barrier of the gastrointestinal system is impaired in IgA deficiency, protozoa such as Giardia lamblia can adhere to the epithelium, proliferate, and cause infection"
Identifies Giardia lamblia infection as the characteristic gastrointestinal infection of SIgAD and gives its mechanism.
PMID:26739713 SUPPORT Human Clinical
"gastrointestinal infections (6.0 vs. 1.8% in controls; PR = 3.5)"
Quantifies the excess of gastrointestinal infection in the matched nationwide cohort.
Celiac Disease OCCASIONAL HP:0002608 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Celiac disease (HP:0002608). HP:0002608 is a phenotype from the Human Phenotype Ontology.
Show evidence (2 references)
PMID:24584841 SUPPORT Human Clinical
"Individuals with IgA deficiency more often had celiac disease (6.7 % vs. 0.19 % in controls) and type 1 diabetes (5.9 % vs. 0.57 %) corresponding to a 35-fold higher PR for celiac disease and 10-fold higher for type 1 diabetes."
The 6.7% cohort prevalence supports the OCCASIONAL (5-29%) frequency band.
PMID:20101521 SUPPORT Human Clinical
"Patients with IgA deficiency are not expected to develop IgA isotype antibodies against gliadin, tissue transglutaminase, or endomysium; however, they may have IgG isotype antibodies against those antigens."
Supports the serological caveat: IgA-based celiac testing fails and IgG isotype assays are required.
Immune 5
Recurrent Sinopulmonary Infections HP:0005425 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Recurrent sinopulmonary infections (HP:0005425). HP:0005425 is a phenotype from the Human Phenotype Ontology.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"These infections are mostly due to bacteria, e.g., Haemophilus influenzae and Streptococcus pneumoniae."
Names the organisms responsible for the characteristic respiratory infections.
PMID:26739713 SUPPORT Human Clinical
"respiratory tract infections (17.8 vs. 6.3% in controls; PR = 3.2)"
Quantifies the excess risk of respiratory tract infection requiring hospital care in a matched nationwide cohort.
Increased Risk of Infection Requiring Hospital Care FREQUENT Recurrent infections HP:0002719 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Recurrent infections (HP:0002719). HP:0002719 is a phenotype from the Human Phenotype Ontology.
Show evidence (1 reference)
PMID:26739713 SUPPORT Human Clinical
"Individuals with IgA deficiency were more likely to have a record of any infection (36.1 vs. 18.8% in controls) corresponding to a PR of 2.4 (95%CI 2.2-2.6)."
The 36.1% figure supports the FREQUENT (30-79%) frequency band for infections severe enough to reach hospital care.
Autoimmunity OCCASIONAL HP:0002960 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Autoimmunity (HP:0002960). HP:0002960 is a phenotype from the Human Phenotype Ontology.
Show evidence (2 references)
PMID:24584841 SUPPORT Human Clinical
"Individuals with IgA deficiency have a higher prevalence of several other autoimmune disorders."
Nationwide matched cohort conclusion establishing the autoimmune excess.
PMID:20101521 SUPPORT Human Clinical
"In a 2004 study, the second most common association with IgA deficiency after recurrent infections was autoimmunity (28%)"
Provides a clinical-series frequency for autoimmunity consistent with the OCCASIONAL band's upper range.
Atopy and Allergic Disease Allergy HP:0012393 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Allergy (HP:0012393). HP:0012393 is a phenotype from the Human Phenotype Ontology.
Show evidence (1 reference)
PMID:20101521 SUPPORT Human Clinical
"allergic manifestations including asthma, atopic dermatitis, allergic rhinitis/conjunctivitis, urticaria, drug allergy, and food allergy were noted in 84% of patients (age range 4–32 years) with selective IgA deficiency"
Names the allergic manifestation spectrum; the widely varying reported frequencies are the reason no frequency band is set on this phenotype.
Anaphylactic Transfusion Reaction Anaphylactic shock HP:0100845 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Anaphylactic shock (HP:0100845). HP:0100845 is a phenotype from the Human Phenotype Ontology.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"IgA-deficient patients may develop anti-IgA antibodies which have a potential to cause anaphylactic reactions upon transfusion of any blood product, such as red blood cells or platelets, which contains trace amounts of IgA"
Establishes the anaphylactic transfusion reaction and its anti-IgA mechanism.
PMID:15679454 SUPPORT Human Clinical
"Despite yielding a definitive diagnosis in fewer than 20 percent of anaphylactic transfusion reactions, investigation for IgA deficiency and the presence of presumably pathogenic IgG anti-IgA is useful in patient management."
Places the IgA/anti-IgA mechanism in the context of anaphylactic transfusion reactions overall, where it explains a minority of cases.
Respiratory 1
Bronchiectasis HP:0002110 Human Phenotype Ontology (HP) Relation: this clinical feature is this phenotype This clinical feature is Bronchiectasis (HP:0002110). HP:0002110 is a phenotype from the Human Phenotype Ontology.
Show evidence (1 reference)
PMID:20101521 SUPPORT Human Clinical
"Some patients may develop end organ damage such as bronchiectasis secondary to recurring or chronic infections"
Documents bronchiectasis as a recognised structural complication of the recurrent infections.
Other 1
Asymptomatic Presentation VERY_FREQUENT
Deliberately unbound: HPO has no term for an asymptomatic presentation, and HP:0002720 (Decreased circulating IgA concentration) — the obvious candidate — already grounds the obligate laboratory phenotype and does not carry the asymptomatic meaning. A new-term request would be the correct future binding.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"In fact, 85–90% of IgA-deficient individuals are asymptomatic."
Quantifies the asymptomatic majority, supporting the VERY_FREQUENT band.
PMID:27763681 SUPPORT Human Clinical
"Although more patients with SIgAD are asymptomatic, selected patients suffer from different clinical complications such as pulmonary infections, allergies, autoimmune diseases, gastrointestinal disorders and malignancy."
Independent review confirms that most patients are asymptomatic and names the complication spectrum of the symptomatic minority.
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Genetic Associations

5
HLA Class II Haplotype Association (Predisposing)
relationship_type: SUSCEPTIBILITY
Show evidence (2 references)
PMID:22291608 SUPPORT Human Clinical
"We confirmed the complex nature of the association with the HLA locus, which is the result of multiple effects spanning the entire HLA region."
Supports treating the HLA contribution as a multi-locus haplotype effect rather than a single-gene association.
PMID:22291608 SUPPORT Human Clinical
"while additional secondary signals were associated with the DRB1*0102 (combined P = 5.86×10(-17); OR = 4.28) and the DRB1*1501 (combined P = 2.24×10(-35); OR = 0.13) alleles"
Gives the secondary risk allele and the protective allele with their effect sizes.
TNFRSF13B (TACI) Variants (Disease-modifying)
Gene: TNFRSF13B hgnc:18153 HUGO Gene Nomenclature Committee (hgnc) Relation: this disease-associated gene is this gene This disease-associated gene is TNFRSF13B (hgnc:18153). hgnc:18153 is a gene from the HUGO Gene Nomenclature Committee. relationship_type: MODIFIER
Show evidence (3 references)
PMID:35748970 SUPPORT Other
"Heterozygous variants in TNFRSF13B have been detected in healthy individuals, thus such variants are likely to be disease-modifying rather"
The IUIS 2022 footnote stating that heterozygous TNFRSF13B variants are disease-modifying rather than disease-causing.
PMID:16007086 SUPPORT Human Clinical
"We found that 4 of 19 unrelated individuals with common variable immunodeficiency (CVID) and 1 of 16 individuals with IgA deficiency (IgAD) had a missense mutation in one allele of TNFRSF13B (encoding TACI)."
Original report of heterozygous TACI variants in IgAD as well as CVID, at a frequency far short of accounting for the disease.
PMID:20101521 SUPPORT Human Clinical
"However, it is controversial whether TACI mutations have a cause–effect relationship with IgA deficiency or CVID"
Review records the unresolved causal status of TACI variants, supporting the MODIFIER rather than CAUSATIVE typing.
IFIH1 (Predisposing)
Gene: IFIH1 hgnc:18873 HUGO Gene Nomenclature Committee (hgnc) Relation: this disease-associated gene is this gene This disease-associated gene is IFIH1 (hgnc:18873). hgnc:18873 is a gene from the HUGO Gene Nomenclature Committee. relationship_type: SUSCEPTIBILITY
Show evidence (1 reference)
PMID:20694011 SUPPORT Human Clinical
"In addition to the known association of HLA with IgAD, we identified association with a nonsynonymous variant in IFIH1 (rs1990760G>A, P = 7.3 x 10(-10)) which was previously associated with type 1 diabetes and systemic lupus erythematosus."
Original GWAS association of IFIH1 with IgAD, noting the shared autoimmunity risk allele.
PVT1 (Predisposing)
Gene: PVT1 hgnc:9709 HUGO Gene Nomenclature Committee (hgnc) Relation: this disease-associated gene is this gene This disease-associated gene is PVT1 (hgnc:9709). hgnc:9709 is a gene from the HUGO Gene Nomenclature Committee. relationship_type: SUSCEPTIBILITY
Show evidence (1 reference)
PMID:27723758 SUPPORT Human Clinical
"Peak new variants (PVT1, P = 4.3 × 10-11; ATG13-AMBRA1, P = 6.7 × 10-10; AHI1, P = 8.4 × 10-10; CLEC16A, P = 1.4 × 10-9) overlapped with autoimmune markers (3/4)"
Reports the genome-wide significant association of PVT1 and the three other new loci with IgAD.
CLEC16A (Predisposing)
Gene: CLEC16A hgnc:29013 HUGO Gene Nomenclature Committee (hgnc) Relation: this disease-associated gene is this gene This disease-associated gene is CLEC16A (hgnc:29013). hgnc:29013 is a gene from the HUGO Gene Nomenclature Committee. relationship_type: SUSCEPTIBILITY
Show evidence (2 references)
PMID:27723758 SUPPORT Human Clinical
"Peak new variants (PVT1, P = 4.3 × 10-11; ATG13-AMBRA1, P = 6.7 × 10-10; AHI1, P = 8.4 × 10-10; CLEC16A, P = 1.4 × 10-9) overlapped with autoimmune markers (3/4)"
Reports the genome-wide significant CLEC16A association in the IgAD meta-analysis.
PMID:20694011 SUPPORT Human Clinical
"Variants in CLEC16A, another known autoimmunity locus, showed suggestive evidence for association (rs6498142C>G, P = 1.8 x 10(-7))"
The earlier, sub-genome-wide signal for CLEC16A that the later meta-analysis confirmed.
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Medical Actions

5
Antibiotic Therapy and Prophylaxis
Action: antibiotic therapyNCI Thesaurus (NCIT) Relation: this treatment is this clinical intervention This treatment is antibiotic therapy (NCIT:C15620). NCIT:C15620 is a clinical intervention from the NCI Thesaurus. Ontology label: Antibiotic Therapy NCIT:C15620
Platform: Small molecule
Treatment of intercurrent bacterial infections, and — in patients with recurrent infections — continuous or seasonal prophylactic antibiotics. This is the mainstay of active management in symptomatic SIgAD; there is no treatment for the IgA deficiency itself.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"If the patient experiences recurrent infections, daily prophylactic antibiotics on a continuous or seasonal intermittent basis may be beneficial."
States the indication and the two dosing patterns for antibiotic prophylaxis in SIgAD.
PMID:27763681 SUPPORT Human Clinical
"There is no specific treatment for patients with symptomatic IgA deficiency, although prophylactic antibiotic therapy along with circumstantial immunoglobulin replacement with justification and supportive care (using a product that contains minimal IgA) could be helpful for patients with a..."
Confirms that management is supportive, with antibiotic prophylaxis first and immunoglobulin replacement only in justified circumstances.
Observation Without Treatment
Action: supportive careNCI Thesaurus (NCIT) Relation: this treatment is this clinical intervention This treatment is supportive care (NCIT:C15747). NCIT:C15747 is a clinical intervention from the NCI Thesaurus. Ontology label: Supportive Care NCIT:C15747
Platform: Other
Asymptomatic patients — the large majority — require no treatment. What they do require is education about the transfusion risk and, in symptomatic patients or those with IgG subclass deficiency, periodic immunological review for evolution to CVID.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"IgA-deficient patients who are diagnosed coincidentally and/or who do not have any symptoms do not need any treatment."
States directly that incidentally diagnosed, asymptomatic patients need no treatment.
PMID:20101521 SUPPORT Human Clinical
"However, awareness and education are of prime importance, particularly to prevent a potential anaphylactic reaction secondary to blood transfusion."
Supports the education component that accompanies non-treatment.
IgA-Deficient or Washed Blood Products
Action: blood transfusion using IgA-deficient or washed productsNCI Thesaurus (NCIT) Relation: this treatment is this clinical intervention This treatment is blood transfusion using IgA-deficient or washed products, annotated with Blood Transfusion (NCIT:C15192). NCIT:C15192 is a clinical intervention from the NCI Thesaurus. Ontology label: Blood Transfusion NCIT:C15192
Platform: Other
Where transfusion is required, the product should come from an IgA-deficient donor or be saline-washed red cells, and the patient should ideally be screened for anti-IgA beforehand. Patients with demonstrated anti-IgA are thereafter restricted to IgA-depleted or IgA-deficient products indefinitely. Medical alert identification is recommended.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"The blood product should be prepared from an IgA-deficient individual, or saline-washed red blood cells should be the choice."
States the two acceptable product options for transfusing an IgA-deficient patient.
PMID:15679454 SUPPORT Human Clinical
"Individuals with demonstrated anti-IgA are thereafter committed to receiving IgA-depleted cellular products or IgA-deficient plasma and derivatives to prevent recurrent severe reactions."
Establishes the indefinite product restriction for anti-IgA-positive patients.
Immunoglobulin Replacement (Restricted Indication)
Action: immunoglobulin therapyNCI Thesaurus (NCIT) Relation: this treatment is this clinical intervention This treatment is immunoglobulin therapy (NCIT:C62710). NCIT:C62710 is a clinical intervention from the NCI Thesaurus. Ontology label: Immunoglobulin Therapy NCIT:C62710
Agent: therapeutic immune globulin NCIT:C2701 NCI Thesaurus (NCIT) Relation: this treatment uses this therapeutic agent This treatment uses therapeutic immune globulin (NCIT:C2701). NCIT:C2701 is a therapeutic agent from the NCI Thesaurus.
Platform: Other
Immunoglobulin replacement is NOT routine therapy for SIgAD. It is considered only where there is a concomitant IgG subclass deficiency or specific antibody deficiency, and then a product with minimal IgA content must be used to avoid sensitising or provoking a reaction in a patient with anti-IgA. Note that immunoglobulin products cannot replace IgA in any case, since they contain essentially none — the indication is for the associated IgG defect, not for the IgA deficiency.
Show evidence (2 references)
PMID:20101521 SUPPORT Human Clinical
"In case of associated IgG subclass deficiency and/or specific antibody deficiency, immunoglobulin treatment via venous or subcutaneous route with a product that contains minimal IgA may be given."
Defines the restricted indication and the minimal-IgA product requirement, supporting the claim that replacement is not routine in SIgAD.
PMID:18520152 SUPPORT Human Clinical
"Early diagnosis of this conversion and institution of immunoglobulin therapy is effective in preventing severe bacterial infections and pulmonary insufficiency."
Supports immunoglobulin therapy as the treatment once a patient has converted to CVID, i.e. once the IgG defect is present.
Vaccination and Vaccine Response Assessment
Action: vaccinationNCI Thesaurus (NCIT) Relation: this treatment is this clinical intervention This treatment is vaccination (NCIT:C15346). NCIT:C15346 is a clinical intervention from the NCI Thesaurus. Ontology label: Vaccination NCIT:C15346
Platform: Vaccine
Routine immunisation is given as normal. Assessment of specific antibody responses to protein and polysaccharide antigens is part of the diagnostic workup and identifies the subset with an additional specific antibody defect, which is the group in whom management diverges.
Show evidence (1 reference)
PMID:20101521 SUPPORT Human Clinical
"Evaluation of a suspected IgA deficiency would generally include a complete blood count with differential, quantitative serum immunoglobulin levels, serum IgG subclasses, specific antibody response to protein and polysaccharide antigens, and lymphocyte subsets."
Establishes specific antibody response testing to vaccine-type antigens as part of the standard SIgAD evaluation.
🔬

Diagnosis

1
Serum Immunoglobulin Quantification
Diagnosis rests on quantitative serum immunoglobulins showing IgA below 7 mg/dL with normal IgG and IgM, in a patient over four years of age, after excluding secondary causes including drugs known to lower serum IgA. The workup additionally includes IgG subclasses, specific antibody responses and lymphocyte subsets, plus testing directed at the associated conditions. Normal IgG and IgM are as much part of the case definition as the low IgA: they are what separate SIgAD from CVID and from the combined isotype deficiencies, and loss of IgG during follow-up is the event that reclassifies a patient as CVID.
Show evidence (3 references)
PMID:20101521 SUPPORT Human Clinical
"Immunoglobulin (Ig) A deficiency (OMIM 137100) is defined as decreased or absent level of serum IgA in the presence of normal serum levels of IgG and IgM in a patient older than 4 years of age, in whom other causes of hypogammaglobulinemia have been excluded"
The diagnostic definition, requiring normal serum IgG and IgM alongside the reduced IgA.
PMID:20101521 SUPPORT Human Clinical
"The threshold of 4 years of age is used to avoid premature diagnosis of IgA deficiency which may be transient in younger children due to delayed ontogeny of IgA system after birth."
Explains the age criterion in the diagnostic definition.
PMID:20101521 SUPPORT Human Clinical
"It would be prudent to take into account the medications that may cause decreased serum levels of IgA in the patient."
Supports the requirement to exclude drug-induced secondary IgA reduction before diagnosing SIgAD.
📈

Progression

1
Progression to common variable immunodeficiency
A minority of patients with SIgAD later lose IgG as well and are reclassified as CVID. Risk is concentrated in symptomatic patients, particularly those with an associated IgG subclass deficiency or autoimmune features, which is the basis for recommending long-term immunological follow-up rather than one-off diagnosis. The shared familial occurrence and the shared B-cell defect are the usual arguments for treating SIgAD and CVID as points on one spectrum.
Show evidence (3 references)
PMID:18520152 SUPPORT Human Clinical
"Here we present 4 patients with IgAD and autoimmune features who subsequently developed CVID."
Documents observed conversion from IgAD to CVID in patients with autoimmune features.
PMID:18520152 SUPPORT Human Clinical
"All symptomatic IgAD patients, especially those with associated IgG subclass deficiency or autoimmune features, should be monitored for evolution to CVID."
Identifies the subgroup at risk of progression and supports the surveillance recommendation captured in the notes.
PMID:20101521 SUPPORT Human Clinical
"However, it is also known that IgA deficiency may progress into CVID, which has a less favorable outcome."
Review confirms progression to CVID as a recognised, prognostically adverse outcome.
📊

Prevalence

3
European-ancestry populations
Point Prevalence 166.7 per 100,000 >1 in 1,000
Approximately 1:600 in populations of Northern European ancestry, i.e. about 167 per 100,000. This is a screening-based (serum IgA) estimate and therefore counts the large asymptomatic majority.
Show evidence (2 references)
PMID:27723758 SUPPORT Human Clinical
"IgAD is the most common primary immunodeficiency and is defined by serum IgA level <0.07 g/L."
Establishes both the biochemical case definition and the framing of IgAD as the most common primary immunodeficiency in the European populations studied.
PMID:22291608 SUPPORT Human Clinical
"affecting approximately 1:600 individuals in populations of Northern European ancestry."
States the 1:600 Northern-European prevalence directly; the cached full text carries the ratio in plain characters.
Japanese volunteer blood donors
Point Prevalence 5.4 per 100,000 (5.4–6.7) 1–9 per 100,000
1:18,500 at a serum IgA threshold of <5 mg/dL (5.4 per 100,000) and 1:14,840 at <10 mg/dL (6.7 per 100,000) among 222,597 Japanese blood donors — one to two orders of magnitude below European-ancestry estimates, which is the clearest single demonstration that SIgAD frequency is ancestry-dependent.
Show evidence (2 references)
PMID:3485858 SUPPORT Human Clinical
"Of the blood donors screened, only 0.007% (1:14,840) were found to be IgA-deficient (less than 10 mg/dl) by means of the double diffusion method, while 0.005% (1:18,500) were less than 5 mg/dl"
Provides the Japanese blood-donor frequencies at both IgA thresholds.
PMID:3485858 SUPPORT Human Clinical
"Statistical analysis of the results clearly showed that the incidence of SIgAD in Japanese blood donors is very much lower than that in blood donors of European ancestry."
Establishes the ancestry dependence of SIgAD frequency directly, by comparison within one study design.
Ireland (UKPID/ESID registry-ascertained cases, 2020)
Point Prevalence 0.75 per 100,000 1–9 per 1,000,000
Registry-ascertained minimum prevalence of diagnosed SIgAD, more than two orders of magnitude below the screening-based European estimate above. The gap is the expected consequence of the asymptomatic majority never reaching an immunology service, not a contradiction between the two figures; SIgAD was nonetheless the fourth most frequent inborn error of immunity in this registry.
Show evidence (1 reference)
PMID:35604475 SUPPORT Human Clinical
"the minimum combined prevalence of CVID was 2.93/100,000, HAE 1.04/100,000, unclassified antibody deficiency 0.80/100,000, selective IgA deficiency 0.75/100,000"
Gives the registry-based minimum prevalence of diagnosed SIgAD for the combined Irish catchment populations.
🔀

Differential Diagnoses

3

Conditions with similar clinical presentations that must be differentiated from Selective IgA Deficiency:

Overlapping Features CVID also features low IgA but with low IgG (and often low IgM) and impaired specific antibody responses. Normal IgG and IgM are what define SIgAD; a patient who loses IgG on follow-up is reclassified as CVID rather than as having two diseases.
Show evidence (1 reference)
PMID:18520152 SUPPORT Human Clinical
"Common variable immunodeficiency (CVID) is a primary antibody deficiency disease that shares many clinical features with IgAD."
Establishes the clinical overlap that makes CVID the principal differential.
Partial IgA Deficiency
Overlapping Features Serum IgA above 7 mg/dL but more than two standard deviations below the age-specific mean is termed partial IgA deficiency and is common; it is not the same entity and is not covered by this record.
Show evidence (1 reference)
PMID:20101521 SUPPORT Human Clinical
"When serum IgA level is higher than 7 mg/dL but two standard deviations below normal for age, the condition may be referred to as partial IgA deficiency, which is quite common."
Defines partial IgA deficiency and distinguishes it from selective IgA deficiency.
IgG Subclass Deficiency with IgA Deficiency
Overlapping Features A separate IUIS Table 3 section 4 entity in which reduced IgA is accompanied by reduction in one or more IgG subclasses. By definition SIgAD has normal IgG subclasses; the combined entity carries a higher infection burden and is the group in whom immunoglobulin replacement is considered.
Show evidence (1 reference)
PMID:35748970 SUPPORT Other
"IgG subclass deficiency with IgA deficiency Unknown ? Reduced IgA with decrease in one or more IgG subclass"
The IUIS row for the neighbouring entity, showing the IgG subclass reduction that distinguishes it from selective IgA deficiency.
{ }

Source YAML

click to show
name: Selective IgA Deficiency
creation_date: "2026-08-29T00:00:00Z"
category: Complex
synonyms:
- SIgAD
- IgAD
- selective IgA immunodeficiency
- immunoglobulin A deficiency
disease_term:
  preferred_term: Selective IgA Deficiency
  term:
    id: MONDO:0001341
    label: selective IgA deficiency disease
parents:
- Primary Immunodeficiency
- Antibody Deficiency Disorder
description: >-
  Selective IgA deficiency (SIgAD) is defined as a serum IgA below 7 mg/dL
  (0.07 g/L) with normal serum IgG and IgM in an individual older than four
  years, other causes of hypogammaglobulinemia having been excluded. The
  four-year threshold avoids diagnosing the physiological delay in IgA ontogeny
  seen in younger children. SIgAD is the most common primary antibody
  deficiency, with a prevalence of roughly 1:600 in populations of European
  ancestry; the frequency is strongly ancestry-dependent and is one to two
  orders of magnitude lower in East Asian populations. The great majority of
  affected individuals — on the order of 85-90% — are asymptomatic and are
  identified incidentally, for example during blood donation or celiac
  serology. Symptomatic patients present with recurrent sinopulmonary and
  gastrointestinal infections, and the diagnosis carries strong associations
  with celiac disease, other autoimmune conditions, atopy, and — in the subset
  who develop anti-IgA antibodies — anaphylactic reactions to IgA-containing
  blood products. A minority of patients, particularly those with concomitant
  IgG subclass deficiency or autoimmunity, progress to common variable
  immunodeficiency, and SIgAD and CVID are widely regarded as lying on a single
  disease spectrum. SCOPE: there is no single causal gene. SIgAD is a
  genetically complex, usually sporadic condition whose largest genetic risk
  factor is the HLA region, with additional common non-HLA risk alleles and
  heterozygous TNFRSF13B (TACI) variants that act as disease-modifying rather
  than disease-causing.
classifications:
  harrisons_chapter:
  - classification_value: IMMUNE_RHEUMATOLOGIC
    notes: >-
      SIgAD is a primary antibody deficiency managed by clinical immunology,
      and its principal non-infectious burden is autoimmune and allergic.
    evidence:
    - reference: PMID:27763681
      reference_title: "Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management."
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        Selective immunoglobulin A deficiency (SIgAD) is the most common primary
        antibody deficiency.
      explanation: >-
        Characterises SIgAD as a primary antibody deficiency, the immunologic
        disease family covered by Harrison's immune/rheumatologic Part.
  iuis_category:
    classification_value: predominantly antibody deficiency
    notes: >-
      IUIS 2022 phenotypic classification Table 3 (predominantly antibody
      deficiencies), section 4 "Isotype, light chain, or functional deficiencies
      with generally normal numbers of B cells". The row lists no genetic defect
      and no inheritance pattern.
    evidence:
    - reference: PMID:35748970
      reference_title: "Human Inborn Errors of Immunity: 2022 Update on the Classification from the International Union of Immunological Societies Expert Committee."
      supports: SUPPORT
      evidence_source: OTHER
      snippet: >-
        Selective IgA deficiency Unknown ? Absent IgA with other isotypes
        normal, normal subclasses and specific antibodies
      explanation: >-
        The IUIS 2022 Table 3 row for selective IgA deficiency, in the isotype
        deficiency section, with the genetic defect given as Unknown.
inheritance:
- name: Polygenic inheritance
  description: >-
    SIgAD does not follow a Mendelian pattern. Familial clustering occurs, but
    inheritance is complex: the dominant genetic risk factor is the HLA region
    (principally the HLA-B*0801-DRB1*0301-DQB1*02 8.1 haplotype and the
    DRB1*0701-DQB1*02 haplotype), with additional common non-HLA risk alleles
    at IFIH1, PVT1, ATG13-AMBRA1, AHI1 and CLEC16A, and heterozygous
    TNFRSF13B variants acting as modifiers.
  inheritance_term:
    preferred_term: Polygenic inheritance
    term:
      id: HP:0010982
      label: Polygenic inheritance
  evidence:
  - reference: PMID:22291608
    reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      The polygenic nature of IgAD is underscored by the recent identification
      of several new risk genes in a genome-wide association study.
    explanation: >-
      States directly that IgAD is polygenic rather than Mendelian.
  - reference: PMID:27723758
    reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      These data suggest that a complex network of genetic effects, including
      genes known to influence the biology of IgA production, contributes to
      IgAD.
    explanation: >-
      The GWAS meta-analysis concludes that a complex, multi-locus genetic
      architecture underlies IgAD.
prevalence:
- population: European-ancestry populations
  measure_type: POINT_PREVALENCE
  prevalence_class: ABOVE_1_IN_1000
  rate_per_100000: 166.7
  notes: >-
    Approximately 1:600 in populations of Northern European ancestry, i.e.
    about 167 per 100,000. This is a screening-based (serum IgA) estimate and
    therefore counts the large asymptomatic majority.
  evidence:
  - reference: PMID:27723758
    reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      IgAD is the most common primary immunodeficiency and is defined by serum
      IgA level <0.07 g/L.
    explanation: >-
      Establishes both the biochemical case definition and the framing of IgAD
      as the most common primary immunodeficiency in the European populations
      studied.
  - reference: PMID:22291608
    reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      affecting approximately 1:600 individuals in populations of Northern
      European ancestry.
    explanation: >-
      States the 1:600 Northern-European prevalence directly; the cached full
      text carries the ratio in plain characters.
- population: Japanese volunteer blood donors
  measure_type: POINT_PREVALENCE
  prevalence_class: BAND_1_9_PER_100000
  rate_per_100000: 5.4
  rate_low: 5.4
  rate_high: 6.7
  notes: >-
    1:18,500 at a serum IgA threshold of <5 mg/dL (5.4 per 100,000) and
    1:14,840 at <10 mg/dL (6.7 per 100,000) among 222,597 Japanese blood
    donors — one to two orders of magnitude below European-ancestry estimates,
    which is the clearest single demonstration that SIgAD frequency is
    ancestry-dependent.
  evidence:
  - reference: PMID:3485858
    reference_title: "Selective IgA deficiency in Japanese blood donors: frequency and statistical analysis."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Of the blood donors screened, only 0.007% (1:14,840) were found to be
      IgA-deficient (less than 10 mg/dl) by means of the double diffusion
      method, while 0.005% (1:18,500) were less than 5 mg/dl
    explanation: >-
      Provides the Japanese blood-donor frequencies at both IgA thresholds.
  - reference: PMID:3485858
    reference_title: "Selective IgA deficiency in Japanese blood donors: frequency and statistical analysis."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Statistical analysis of the results clearly showed that the incidence of
      SIgAD in Japanese blood donors is very much lower than that in blood
      donors of European ancestry.
    explanation: >-
      Establishes the ancestry dependence of SIgAD frequency directly, by
      comparison within one study design.
- population: Ireland (UKPID/ESID registry-ascertained cases, 2020)
  measure_type: POINT_PREVALENCE
  prevalence_class: BAND_1_9_PER_1000000
  rate_per_100000: 0.75
  notes: >-
    Registry-ascertained minimum prevalence of diagnosed SIgAD, more than two
    orders of magnitude below the screening-based European estimate above. The
    gap is the expected consequence of the asymptomatic majority never reaching
    an immunology service, not a contradiction between the two figures; SIgAD
    was nonetheless the fourth most frequent inborn error of immunity in this
    registry.
  evidence:
  - reference: PMID:35604475
    reference_title: "Inborn Errors of Immunity on the Island of Ireland - a Cross-Jurisdictional UKPID/ESID Registry Report."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      the minimum combined prevalence of CVID was 2.93/100,000, HAE
      1.04/100,000, unclassified antibody deficiency 0.80/100,000, selective
      IgA deficiency 0.75/100,000
    explanation: >-
      Gives the registry-based minimum prevalence of diagnosed SIgAD for the
      combined Irish catchment populations.
progression:
- phase: Progression to common variable immunodeficiency
  notes: >-
    A minority of patients with SIgAD later lose IgG as well and are
    reclassified as CVID. Risk is concentrated in symptomatic patients,
    particularly those with an associated IgG subclass deficiency or autoimmune
    features, which is the basis for recommending long-term immunological
    follow-up rather than one-off diagnosis. The shared familial occurrence and
    the shared B-cell defect are the usual arguments for treating SIgAD and
    CVID as points on one spectrum.
  evidence:
  - reference: PMID:18520152
    reference_title: "Progression of selective IgA deficiency to common variable immunodeficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Here we present 4 patients with IgAD and autoimmune features who
      subsequently developed CVID.
    explanation: >-
      Documents observed conversion from IgAD to CVID in patients with
      autoimmune features.
  - reference: PMID:18520152
    reference_title: "Progression of selective IgA deficiency to common variable immunodeficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      All symptomatic IgAD patients, especially those with associated IgG
      subclass deficiency or autoimmune features, should be monitored for
      evolution to CVID.
    explanation: >-
      Identifies the subgroup at risk of progression and supports the
      surveillance recommendation captured in the notes.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      However, it is also known that IgA deficiency may progress into CVID,
      which has a less favorable outcome.
    explanation: >-
      Review confirms progression to CVID as a recognised, prognostically
      adverse outcome.
pathophysiology:
- name: Failure of Terminal B Cell Differentiation to IgA-Secreting Plasma Cells
  biological_scale: CELLULAR
  description: >-
    The core defect in SIgAD is a maturation arrest at the last step of the IgA
    lineage. B cell numbers are normal and IgA-committed B cells are present and
    surface-IgA positive, but they retain an immature phenotype co-expressing
    IgM and IgD and do not complete terminal differentiation into IgA-secreting
    plasma cells. The block is intrinsic enough to be transferred with
    hematopoietic stem cells. Whether it reflects a B-cell-intrinsic defect, a
    T-helper or cytokine-environment defect, or several of these in different
    patients, is unresolved; IL-21 can restore IgA production from these B cells
    ex vivo, which places the block downstream of an inducible signal rather
    than at an irreversible lesion.
  cell_types:
  - preferred_term: IgA-committed B cell
    term:
      id: CL:0000236
      label: B cell
  - preferred_term: IgA plasma cell
    term:
      id: CL:0000987
      label: IgA plasma cell
  biological_processes:
  - preferred_term: plasma cell differentiation
    term:
      id: GO:0002317
      label: plasma cell differentiation
    modifier: DECREASED
  - preferred_term: isotype switching to IgA isotypes
    term:
      id: GO:0048290
      label: isotype switching to IgA isotypes
    modifier: DECREASED
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In IgA deficiency, B cells express IgA; however, they are of immature
      phenotype with the coexpression of IgM and IgD, and they cannot fully
      develop into IgA-secreting plasma cells
    explanation: >-
      States the maturation-arrest mechanism precisely: IgA-expressing B cells
      are present but cannot complete differentiation into plasma cells.
  - reference: PMID:27723758
    reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In IgAD, B cells fail to terminally differentiate into IgA+ plasma cells
    explanation: >-
      Independent statement of the same terminal-differentiation block.
  - reference: PMID:27763681
    reference_title: "Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Pathogenesis of SIgAD is still unknown; however, a defective terminal
      differentiation of B cells and defect in switching to IgA-producing plasma
      cells are presumed to be responsible.
    explanation: >-
      Review supports the differentiation/class-switch block while making clear
      that the upstream cause remains unknown.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      The defect appears to involve the stem cells since IgA deficiency can be
      transferred by bone marrow transplantation
    explanation: >-
      Transferability with hematopoietic stem cells supports a hematopoietic,
      B-lineage-intrinsic rather than a stromal or systemic cause.
  notes: >-
    Considered as a conformer to germinal_center_reaction#Affinity-Matured
    Class-Switched B Cell Output (dismech issue #11897) and not declared. Every
    declared conformer of that module substitutes a single lesion that blocks
    the reaction broadly; here the defect is isotype-restricted rather than a
    failure of the reaction as such — IgG and IgM are normal by the disease's
    own case definition, whereas the module's output node covers plasma-cell
    and memory-B-cell output in general. The immunoglobulin heavy-chain alpha
    loci are structurally intact (see Intact Immunoglobulin Heavy Chain Alpha
    Loci below), so there is no lesion in the chain the module models, only a
    downstream isotype-specific block whose upstream driver is unresolved (see
    the HLA-to-differentiation-block knowledge gap below). Revisit if a
    mechanism connecting an upstream lesion to this isotype-specific block is
    established.
  downstream:
  - target: Absent Serum and Secretory IgA
    causal_link_type: DIRECT
    description: >-
      Failure to generate IgA-secreting plasma cells removes the source of both
      circulating monomeric IgA and locally produced dimeric secretory IgA.
    evidence:
    - reference: PMID:27723758
      reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        IgAD is the most common primary immunodeficiency and is defined by serum
        IgA level <0.07 g/L.
      explanation: >-
        Ties the plasma-cell differentiation block described in this node to the
        defining biochemical outcome, an essentially absent serum IgA.
- name: Intact Immunoglobulin Heavy Chain Alpha Loci
  biological_scale: MOLECULAR
  description: >-
    The constant-region alpha-1 and alpha-2 heavy chain genes on chromosome 14
    are structurally normal in the great majority of patients. Deletions of the
    heavy chain constant-region cluster do exist but are rare and are a
    separate IUIS entity; where they occur, the associated deficiencies extend
    beyond IgA to IgG2, IgG4 and IgE. This node exists to record a negative
    that constrains the mechanism: SIgAD is a regulatory/differentiation
    failure, not a structural loss of the genes encoding IgA, which is why no
    single causal gene is curated for this disease.
  molecular_functions:
  - preferred_term: immunoglobulin receptor binding
    term:
      id: GO:0034987
      label: immunoglobulin receptor binding
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      The constant α1 and α2 genes are generally normal except for rarely
      described cases of heavy chain gene deletions involving various segments
      on chromosome 14
    explanation: >-
      Establishes that the IgA heavy-chain constant-region loci are intact in
      typical SIgAD, excluding a structural gene defect as the general
      mechanism.
  downstream:
  - target: Failure of Terminal B Cell Differentiation to IgA-Secreting Plasma Cells
    causal_link_type: INDIRECT_UNKNOWN_INTERMEDIATES
    description: >-
      With the alpha constant-region genes intact, the deficiency must arise at
      the level of IgA-lineage differentiation and class-switch regulation
      rather than from absence of the structural genes.
    evidence:
    - reference: PMID:27763681
      reference_title: "Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management."
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        Pathogenesis of SIgAD is still unknown; however, a defective terminal
        differentiation of B cells and defect in switching to IgA-producing
        plasma cells are presumed to be responsible.
      explanation: >-
        Locates the presumed defect at differentiation and switching, consistent
        with structurally normal IgA loci.
- name: Absent Serum and Secretory IgA
  biological_scale: ORGANISM
  description: >-
    Serum IgA falls below 7 mg/dL (0.07 g/L) with normal IgG and IgM, and the
    dimeric secretory IgA normally transported across mucosal epithelium by the
    polymeric immunoglobulin receptor is correspondingly reduced. Serum IgA is
    what is measured clinically; secretory IgA is not, and residual mucosal IgA
    in some patients is one of the proposed explanations for the asymptomatic
    majority. A compensatory increase in secretory IgM is seen in most, but not
    all, IgA-deficient individuals.
  biological_processes:
  - preferred_term: immunoglobulin production in mucosal tissue
    term:
      id: GO:0002426
      label: immunoglobulin production in mucosal tissue
    modifier: DECREASED
  - preferred_term: polymeric immunoglobulin receptor-mediated transcytosis of secretory IgA
    term:
      id: GO:0002415
      label: immunoglobulin transcytosis in epithelial cells mediated by polymeric immunoglobulin receptor
    modifier: DECREASED
  cell_types:
  - preferred_term: mucosal epithelial cell
    term:
      id: CL:0002563
      label: intestinal epithelial cell
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In general, serum IgA level of less than 7 mg/dL (0.07 g/L) is considered
      as selective IgA deficiency since this concentration is the lowest
      detectable limit established by most of the laboratories.
    explanation: >-
      Gives the biochemical threshold that defines this node.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      in most IgA-deficient patients, seemingly as a compensatory mechanism,
      production of secretory IgM is increased
    explanation: >-
      Documents the compensatory secretory-IgM response that partly offsets the
      loss of secretory IgA.
  downstream:
  - target: Impaired Mucosal Immune Exclusion
    causal_link_type: DIRECT
    description: >-
      Secretory IgA is the effector that coats commensal and pathogenic bacteria
      at mucosal surfaces; without it, immune exclusion is degraded.
    evidence:
    - reference: PMID:20101521
      reference_title: Selective IgA deficiency.
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        Bacteria endogenous to the intestinal tract, oral cavity, and
        respiratory and genital tracts are coated with secretory IgA. As a
        result, the epithelial adherence and penetration of bacteria are
        limited, and the bacteria are confined to the mucosal surfaces
      explanation: >-
        Describes the immune-exclusion function that is lost when secretory IgA
        is absent.
  - target: Anti-IgA Alloimmunization
    causal_link_type: INDIRECT_UNKNOWN_INTERMEDIATES
    description: >-
      Because IgA is effectively absent, exogenous IgA in transfused blood
      products is seen as a foreign antigen and can elicit anti-IgA antibodies.
    evidence:
    - reference: PMID:20101521
      reference_title: Selective IgA deficiency.
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        IgA-deficient patients may develop anti-IgA antibodies which have a
        potential to cause anaphylactic reactions upon transfusion of any blood
        product, such as red blood cells or platelets, which contains trace
        amounts of IgA
      explanation: >-
        Directly links the absence of IgA to anti-IgA antibody formation and
        transfusion reactions.
- name: Impaired Mucosal Immune Exclusion
  biological_scale: TISSUE
  description: >-
    Loss of secretory IgA at respiratory and gastrointestinal surfaces permits
    increased epithelial adherence and penetration by bacteria and protozoa, and
    increased translocation of intact macromolecules across the mucosal barrier.
    Both consequences matter: the first drives the infectious phenotype, the
    second is a plausible route by which food and microbial antigens reach the
    submucosal immune system in quantity.
  biological_processes:
  - preferred_term: mucosal immune response
    term:
      id: GO:0002385
      label: mucosal immune response
    modifier: DECREASED
  - preferred_term: defense response to bacterium
    term:
      id: GO:0042742
      label: defense response to bacterium
    modifier: DECREASED
  cell_types:
  - preferred_term: intestinal epithelial cell
    term:
      id: CL:0002563
      label: intestinal epithelial cell
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Since the protective barrier of the gastrointestinal system is impaired in
      IgA deficiency, protozoa such as Giardia lamblia can adhere to the
      epithelium, proliferate, and cause infection
    explanation: >-
      Concrete instance of failed mucosal exclusion in the gut.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Even in the absence of infection, some molecules may enter the
      subepidermal and submucosal tissue because of the impaired mucosal
      clearance of macromolecules and proteins.
    explanation: >-
      Supports the second, non-infectious consequence of failed exclusion:
      increased antigen translocation across the mucosa.
  downstream:
  - target: Recurrent Sinopulmonary Infections
    causal_link_type: DIRECT
    description: >-
      Reduced mucosal antibody at the respiratory epithelium underlies the
      recurrent bacterial sinopulmonary infections seen in symptomatic patients.
    evidence:
    - reference: PMID:20101521
      reference_title: Selective IgA deficiency.
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        Infections of the respiratory system are the most common findings in
        individuals with IgA deficiency
      explanation: >-
        Identifies respiratory infection as the dominant infectious consequence.
  - target: Immune Dysregulation and Autoimmunity
    causal_link_type: INDIRECT_UNKNOWN_INTERMEDIATES
    description: >-
      Increased translocation of dietary and microbial antigens across a poorly
      excluded mucosa is a proposed route from the IgA defect to the celiac and
      autoimmune associations; the link is mechanistically plausible rather than
      established, since HLA risk is shared between SIgAD and these conditions
      and could explain the association without any causal step.
    evidence:
    - reference: PMID:20101521
      reference_title: Selective IgA deficiency.
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      directness: INDIRECT
      snippet: >-
        This process may facilitate antibody production against certain antigens
        and intolerance to certain foods
      explanation: >-
        Supports the proposed antigen-translocation route to food intolerance;
        the source itself frames this as a mechanism that "may" operate, so the
        quote bears on the claim indirectly.
- name: Immune Dysregulation and Autoimmunity
  biological_scale: ORGANISM
  description: >-
    SIgAD carries a markedly increased burden of autoimmune disease, most
    strikingly celiac disease (about 35-fold) and type 1 diabetes (about
    10-fold), and also juvenile idiopathic arthritis, SLE, inflammatory bowel
    disease, thyroid disease and rheumatoid arthritis. The GWAS evidence points
    at a shared genetic basis rather than a purely downstream consequence: IgAD
    risk loci are significantly enriched for established autoimmunity loci, and
    the dominant HLA haplotype is the same 8.1 haplotype that confers risk for
    several of these conditions. Autoantibodies are detectable in IgA-deficient
    individuals without overt clinical autoimmune disease.
  cell_types:
  - preferred_term: B cell
    term:
      id: CL:0000236
      label: B cell
  biological_processes:
  - preferred_term: adaptive immune response
    term:
      id: GO:0002250
      label: adaptive immune response
    modifier: ABNORMAL
  evidence:
  - reference: PMID:24584841
    reference_title: "Association between IgA deficiency & other autoimmune conditions: a population-based matched cohort study."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Individuals with IgA deficiency more often had celiac disease (6.7 % vs.
      0.19 % in controls) and type 1 diabetes (5.9 % vs. 0.57 %) corresponding
      to a 35-fold higher PR for celiac disease and 10-fold higher for type 1
      diabetes.
    explanation: >-
      Quantifies the two strongest autoimmune associations in a nationwide
      matched cohort of 2100 IgA-deficient individuals.
  - reference: PMID:20694011
    reference_title: "Association of IFIH1 and other autoimmunity risk alleles with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      These findings support the hypothesis that autoimmune mechanisms may
      contribute to the pathogenesis of IgAD.
    explanation: >-
      GWAS enrichment of autoimmunity loci in IgAD supports a shared
      immune-dysregulation basis rather than a purely secondary association.
  downstream:
  - target: Celiac Disease
    causal_link_type: INDIRECT_UNKNOWN_INTERMEDIATES
    description: >-
      Celiac disease is the single strongest disease association with SIgAD and
      is the reason IgA-based celiac serology is unreliable in these patients.
    evidence:
    - reference: PMID:27723758
      reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        The prevalence of Celiac disease is 35 times higher in IgAD patients
        whereas the prevalence of systemic lupus erythematosus (SLE) and type 1
        diabetes (T1D) is 10 times higher.
      explanation: >-
        Quantifies the celiac association independently of the Swedish cohort
        study.
- name: HLA Class II Haplotype Susceptibility
  biological_scale: MOLECULAR
  description: >-
    The HLA region is the largest genetic risk factor for SIgAD. High-density
    SNP mapping and HLA imputation across three European populations place the
    primary signal at HLA-DQB1*02, arising from the independent effects of the
    HLA-B*0801-DRB1*0301-DQB1*02 and DRB1*0701-DQB1*02 haplotypes, with a
    secondary risk signal at DRB1*0102 and a strongly protective effect of
    DRB1*1501. Risk is conferred by the common extended 8.1 haplotype acting
    multiplicatively rather than by a single distinct SIgAD haplotype. Because
    the same haplotype confers risk for celiac disease and type 1 diabetes,
    this node is also the most economical explanation available for part of the
    autoimmune association.
  evidence:
  - reference: PMID:22291608
    reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Among the characterized susceptibility loci, the association with specific
      HLA haplotypes represents the major genetic risk factor for IgAD.
    explanation: >-
      States that HLA is the dominant genetic risk factor for IgAD.
  - reference: PMID:22291608
    reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      resulting from the combined independent effects of the
      HLA-B*0801-DRB1*0301-DQB1*02 and -DRB1*0701-DQB1*02 haplotypes
    explanation: >-
      Identifies the two specific risk haplotypes underlying the primary
      HLA-DQB1*02 signal.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      IgA deficiency is not associated with a distinct haplotype; rather, the
      risk is conferred by the common extended MHC haplotype HLA A1, B8, DR3,
      and DQ2 (the 8.1 haplotype) acting in a multiplicative manner
    explanation: >-
      Supports the specific claim that risk comes from the common 8.1 haplotype
      rather than a SIgAD-specific one.
  downstream:
  - target: Failure of Terminal B Cell Differentiation to IgA-Secreting Plasma Cells
    causal_link_type: INDIRECT_UNKNOWN_INTERMEDIATES
    description: >-
      HLA class II haplotype is the largest measured contributor to SIgAD risk
      and therefore sits upstream of the B-cell differentiation block, though
      no mechanism connecting the haplotype to the maturation arrest has been
      established.
    evidence:
    - reference: PMID:22291608
      reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      directness: INDIRECT
      snippet: >-
        Among the characterized susceptibility loci, the association with
        specific HLA haplotypes represents the major genetic risk factor for
        IgAD.
      explanation: >-
        Supports HLA as the dominant upstream risk factor; the intervening
        mechanism is not established by this or any cited source, so the quote
        bears on the edge indirectly.
- name: Anti-IgA Alloimmunization
  biological_scale: ORGANISM
  description: >-
    A subset of IgA-deficient individuals develop antibodies against IgA. On
    exposure to IgA-containing blood products these can precipitate an
    anaphylactic transfusion reaction; the antibody capable of a type I
    hypersensitivity reaction is of IgE isotype, although IgG anti-IgA is what
    is routinely measured. Roughly one third of severely IgA-deficient
    individuals carry detectable anti-IgA, and a comparable proportion was found
    among Japanese as among European-ancestry IgA-deficient donors. The
    predictive value of a positive test in someone who has never reacted is
    low, so the finding drives product selection rather than a diagnosis.
  biological_processes:
  - preferred_term: immunoglobulin production
    term:
      id: GO:0002377
      label: immunoglobulin production
  evidence:
  - reference: PMID:15679454
    reference_title: "Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      The test methods used to establish the diagnosis of IgA deficiency and
      identify the approximately one third of these individuals with anti-IgA
      are discussed
    explanation: >-
      Quantifies the proportion of IgA-deficient individuals carrying anti-IgA
      antibodies.
  - reference: PMID:3485858
    reference_title: "Selective IgA deficiency in Japanese blood donors: frequency and statistical analysis."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Anti-IgA antibodies were found in 3 (25.0%) of 12 IgA-deficient blood
      donors whose IgA levels were less than 5 mg/dl, a prevalence rate
      comparable to that in donors of European ancestry.
    explanation: >-
      Shows anti-IgA alloimmunization occurs at a similar rate across
      ancestries even though SIgAD frequency itself differs sharply.
  - reference: PMID:15679454
    reference_title: "Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      in populations of IgA-deficient individuals screened for anti-IgA, the
      predictive value of the test in the absence of a prior reaction is quite
      low
    explanation: >-
      Supports the caveat that a positive anti-IgA screen does not by itself
      predict a reaction.
  downstream:
  - target: Anaphylactic Transfusion Reaction
    causal_link_type: DIRECT
    description: >-
      Anti-IgA antibodies mediate severe reactions to blood products containing
      trace IgA, which is why affected patients require IgA-depleted or
      IgA-deficient products.
    evidence:
    - reference: PMID:15679454
      reference_title: "Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products."
      supports: SUPPORT
      evidence_source: HUMAN_CLINICAL
      snippet: >-
        Individuals with demonstrated anti-IgA are thereafter committed to
        receiving IgA-depleted cellular products or IgA-deficient plasma and
        derivatives to prevent recurrent severe reactions.
      explanation: >-
        Confirms the causal role of anti-IgA in recurrent severe transfusion
        reactions and the resulting product restriction.
phenotypes:
- name: Absent or Markedly Reduced Serum IgA
  category: Immunologic
  frequency: OBLIGATE
  description: >-
    Serum IgA below 7 mg/dL (0.07 g/L) is the defining laboratory finding and
    is present by definition in every case.
  phenotype_term:
    preferred_term: Decreased circulating IgA concentration
    term:
      id: HP:0002720
      label: Decreased circulating IgA concentration
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Immunoglobulin (Ig) A deficiency (OMIM 137100) is defined as decreased or
      absent level of serum IgA in the presence of normal serum levels of IgG
      and IgM in a patient older than 4 years of age, in whom other causes of
      hypogammaglobulinemia have been excluded
    explanation: >-
      The diagnostic definition, including the normal IgG/IgM requirement and
      the four-year age threshold.
- name: Asymptomatic Presentation
  category: Immunologic
  frequency: VERY_FREQUENT
  description: >-
    The majority of individuals meeting the biochemical definition never
    develop clinical disease and are found incidentally. This is the single
    most important epidemiological fact about SIgAD and the reason
    screening-based and registry-based prevalence estimates differ by two
    orders of magnitude.
  phenotype_term:
    preferred_term: asymptomatic IgA deficiency
  notes: >-
    Deliberately unbound: HPO has no term for an asymptomatic presentation,
    and HP:0002720 (Decreased circulating IgA concentration) — the obvious
    candidate — already grounds the obligate laboratory phenotype and does
    not carry the asymptomatic meaning. A new-term request would be the
    correct future binding.
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In fact, 85–90% of IgA-deficient individuals are asymptomatic.
    explanation: >-
      Quantifies the asymptomatic majority, supporting the VERY_FREQUENT band.
  - reference: PMID:27763681
    reference_title: "Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Although more patients with SIgAD are asymptomatic, selected patients
      suffer from different clinical complications such as pulmonary infections,
      allergies, autoimmune diseases, gastrointestinal disorders and malignancy.
    explanation: >-
      Independent review confirms that most patients are asymptomatic and names
      the complication spectrum of the symptomatic minority.
- name: Recurrent Sinopulmonary Infections
  category: Immunologic
  description: >-
    Recurrent bacterial infections of the upper and lower respiratory tract,
    predominantly Haemophilus influenzae and Streptococcus pneumoniae, are the
    most common clinical finding in symptomatic patients.
  phenotype_term:
    preferred_term: Recurrent sinopulmonary infections
    term:
      id: HP:0005425
      label: Recurrent sinopulmonary infections
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      These infections are mostly due to bacteria, e.g., Haemophilus influenzae
      and Streptococcus pneumoniae.
    explanation: >-
      Names the organisms responsible for the characteristic respiratory
      infections.
  - reference: PMID:26739713
    reference_title: "Risk of Infections Among 2100 Individuals with IgA Deficiency: a Nationwide Cohort Study."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      respiratory tract infections (17.8 vs. 6.3% in controls; PR = 3.2)
    explanation: >-
      Quantifies the excess risk of respiratory tract infection requiring
      hospital care in a matched nationwide cohort.
- name: Increased Risk of Infection Requiring Hospital Care
  category: Immunologic
  frequency: FREQUENT
  description: >-
    Across a nationwide cohort of 2100 IgA-deficient individuals, 36.1% had a
    hospital record of any infection compared with 18.8% of matched controls,
    with significant excesses for gastrointestinal infection, sepsis,
    meningitis, otitis and urinary tract infection as well as respiratory
    infection.
  phenotype_term:
    preferred_term: Recurrent infections
    term:
      id: HP:0002719
      label: Recurrent infections
  evidence:
  - reference: PMID:26739713
    reference_title: "Risk of Infections Among 2100 Individuals with IgA Deficiency: a Nationwide Cohort Study."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Individuals with IgA deficiency were more likely to have a record of any
      infection (36.1 vs. 18.8% in controls) corresponding to a PR of 2.4 (95%CI
      2.2-2.6).
    explanation: >-
      The 36.1% figure supports the FREQUENT (30-79%) frequency band for
      infections severe enough to reach hospital care.
- name: Gastrointestinal Infections
  category: Gastrointestinal
  description: >-
    Impaired mucosal exclusion permits gastrointestinal infection, classically
    giardiasis, at about three times the population rate.
  phenotype_term:
    preferred_term: Frequent Giardia lamblia infestation
    term:
      id: HP:0005215
      label: Frequent Giardia lamblia infestation
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Since the protective barrier of the gastrointestinal system is impaired in
      IgA deficiency, protozoa such as Giardia lamblia can adhere to the
      epithelium, proliferate, and cause infection
    explanation: >-
      Identifies Giardia lamblia infection as the characteristic gastrointestinal
      infection of SIgAD and gives its mechanism.
  - reference: PMID:26739713
    reference_title: "Risk of Infections Among 2100 Individuals with IgA Deficiency: a Nationwide Cohort Study."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      gastrointestinal infections (6.0 vs. 1.8% in controls; PR = 3.5)
    explanation: >-
      Quantifies the excess of gastrointestinal infection in the matched
      nationwide cohort.
- name: Bronchiectasis
  category: Respiratory
  description: >-
    End-organ airway damage secondary to recurrent or chronic respiratory
    infection, seen in a subset of symptomatic patients.
  phenotype_term:
    preferred_term: Bronchiectasis
    term:
      id: HP:0002110
      label: Bronchiectasis
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Some patients may develop end organ damage such as bronchiectasis
      secondary to recurring or chronic infections
    explanation: >-
      Documents bronchiectasis as a recognised structural complication of the
      recurrent infections.
- name: Celiac Disease
  category: Gastrointestinal
  frequency: OCCASIONAL
  description: >-
    Celiac disease was present in 6.7% of IgA-deficient individuals versus
    0.19% of matched controls, a 35-fold excess. IgA-based celiac serology
    (IgA anti-transglutaminase, anti-endomysial) is uninterpretable in these
    patients and IgG-isotype assays must be used instead.
  phenotype_term:
    preferred_term: Celiac disease
    term:
      id: HP:0002608
      label: Celiac disease
  evidence:
  - reference: PMID:24584841
    reference_title: "Association between IgA deficiency & other autoimmune conditions: a population-based matched cohort study."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Individuals with IgA deficiency more often had celiac disease (6.7 % vs.
      0.19 % in controls) and type 1 diabetes (5.9 % vs. 0.57 %) corresponding
      to a 35-fold higher PR for celiac disease and 10-fold higher for type 1
      diabetes.
    explanation: >-
      The 6.7% cohort prevalence supports the OCCASIONAL (5-29%) frequency band.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Patients with IgA deficiency are not expected to develop IgA isotype
      antibodies against gliadin, tissue transglutaminase, or endomysium;
      however, they may have IgG isotype antibodies against those antigens.
    explanation: >-
      Supports the serological caveat: IgA-based celiac testing fails and IgG
      isotype assays are required.
- name: Autoimmunity
  category: Immunologic
  frequency: OCCASIONAL
  description: >-
    Beyond celiac disease, IgA-deficient individuals carry significantly
    elevated prevalences of type 1 diabetes, juvenile idiopathic arthritis,
    SLE, inflammatory bowel disease, thyroid disease and rheumatoid arthritis.
    Reported overall autoimmunity frequencies in clinical series range from
    about 19% to 28% depending on the age of the population studied.
  phenotype_term:
    preferred_term: Autoimmunity
    term:
      id: HP:0002960
      label: Autoimmunity
  evidence:
  - reference: PMID:24584841
    reference_title: "Association between IgA deficiency & other autoimmune conditions: a population-based matched cohort study."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Individuals with IgA deficiency have a higher prevalence of several other
      autoimmune disorders.
    explanation: >-
      Nationwide matched cohort conclusion establishing the autoimmune excess.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In a 2004 study, the second most common association with IgA deficiency
      after recurrent infections was autoimmunity (28%)
    explanation: >-
      Provides a clinical-series frequency for autoimmunity consistent with the
      OCCASIONAL band's upper range.
- name: Atopy and Allergic Disease
  category: Immunologic
  description: >-
    Asthma, atopic dermatitis, allergic rhinoconjunctivitis, urticaria, drug
    allergy and food allergy are all over-represented. Reported frequencies
    vary very widely with case definition and ascertainment method — from 13%
    in one survey to 84% in a series using skin-prick testing — so no single
    frequency band is asserted here.
  phenotype_term:
    preferred_term: Allergy
    term:
      id: HP:0012393
      label: Allergy
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      allergic manifestations including asthma, atopic dermatitis, allergic
      rhinitis/conjunctivitis, urticaria, drug allergy, and food allergy were
      noted in 84% of patients (age range 4–32 years) with selective IgA
      deficiency
    explanation: >-
      Names the allergic manifestation spectrum; the widely varying reported
      frequencies are the reason no frequency band is set on this phenotype.
- name: Anaphylactic Transfusion Reaction
  category: Immunologic
  description: >-
    Patients with anti-IgA antibodies can develop anaphylaxis on exposure to
    blood products containing trace IgA. This is rare but is the one
    life-threatening complication that can occur in an otherwise entirely
    asymptomatic patient, which is why awareness and medical alert
    identification are recommended irrespective of symptoms.
  phenotype_term:
    preferred_term: Anaphylactic shock
    term:
      id: HP:0100845
      label: Anaphylactic shock
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      IgA-deficient patients may develop anti-IgA antibodies which have a
      potential to cause anaphylactic reactions upon transfusion of any blood
      product, such as red blood cells or platelets, which contains trace
      amounts of IgA
    explanation: >-
      Establishes the anaphylactic transfusion reaction and its anti-IgA
      mechanism.
  - reference: PMID:15679454
    reference_title: "Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Despite yielding a definitive diagnosis in fewer than 20 percent of
      anaphylactic transfusion reactions, investigation for IgA deficiency and
      the presence of presumably pathogenic IgG anti-IgA is useful in patient
      management.
    explanation: >-
      Places the IgA/anti-IgA mechanism in the context of anaphylactic
      transfusion reactions overall, where it explains a minority of cases.
genetic:
- name: HLA Class II Haplotype Association
  association: Predisposing
  relationship_type: SUSCEPTIBILITY
  notes: >-
    No gene_term is bound here because the association is to extended MHC
    haplotypes rather than to a single gene: the primary signal is HLA-DQB1*02
    arising from the HLA-B*0801-DRB1*0301-DQB1*02 and DRB1*0701-DQB1*02
    haplotypes, with a secondary signal at DRB1*0102 and a protective effect of
    DRB1*1501. Naming one HLA gene would misstate what was measured.
  evidence:
  - reference: PMID:22291608
    reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      We confirmed the complex nature of the association with the HLA locus,
      which is the result of multiple effects spanning the entire HLA region.
    explanation: >-
      Supports treating the HLA contribution as a multi-locus haplotype effect
      rather than a single-gene association.
  - reference: PMID:22291608
    reference_title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      while additional secondary signals were associated with the DRB1*0102
      (combined P = 5.86×10(-17); OR = 4.28) and the DRB1*1501 (combined P =
      2.24×10(-35); OR = 0.13) alleles
    explanation: >-
      Gives the secondary risk allele and the protective allele with their
      effect sizes.
- name: TNFRSF13B (TACI) Variants
  association: Disease-modifying
  relationship_type: MODIFIER
  gene_term:
    preferred_term: TNFRSF13B
    term:
      id: hgnc:18153
      label: TNFRSF13B
  notes: >-
    Heterozygous TNFRSF13B variants are found in a subset of SIgAD patients and
    also in CVID patients, sometimes in the same family, but they occur in
    healthy individuals too. IUIS states explicitly that such variants are
    likely disease-modifying rather than disease-causing, and they are typed
    MODIFIER here for that reason — this is not a causal gene for SIgAD.
  evidence:
  - reference: PMID:35748970
    reference_title: "Human Inborn Errors of Immunity: 2022 Update on the Classification from the International Union of Immunological Societies Expert Committee."
    supports: SUPPORT
    evidence_source: OTHER
    snippet: >-
      Heterozygous variants in TNFRSF13B have been detected in healthy
      individuals, thus such variants are likely to be disease-modifying rather
    explanation: >-
      The IUIS 2022 footnote stating that heterozygous TNFRSF13B variants are
      disease-modifying rather than disease-causing.
  - reference: PMID:16007086
    reference_title: "TACI is mutant in common variable immunodeficiency and IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      We found that 4 of 19 unrelated individuals with common variable
      immunodeficiency (CVID) and 1 of 16 individuals with IgA deficiency
      (IgAD) had a missense mutation in one allele of TNFRSF13B (encoding
      TACI).
    explanation: >-
      Original report of heterozygous TACI variants in IgAD as well as CVID,
      at a frequency far short of accounting for the disease.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      However, it is controversial whether TACI mutations have a cause–effect
      relationship with IgA deficiency or CVID
    explanation: >-
      Review records the unresolved causal status of TACI variants, supporting
      the MODIFIER rather than CAUSATIVE typing.
- name: IFIH1
  association: Predisposing
  relationship_type: SUSCEPTIBILITY
  gene_term:
    preferred_term: IFIH1
    term:
      id: hgnc:18873
      label: IFIH1
  notes: >-
    The first and, for some years, only non-HLA genome-wide significant IgAD
    locus. The common nonsynonymous variant rs1990760 is a shared autoimmunity
    allele also associated with type 1 diabetes and SLE; a rare IFIH1 variant
    (p.Ile923Val) was subsequently associated in the larger meta-analysis.
  evidence:
  - reference: PMID:20694011
    reference_title: "Association of IFIH1 and other autoimmunity risk alleles with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In addition to the known association of HLA with IgAD, we identified
      association with a nonsynonymous variant in IFIH1 (rs1990760G>A, P = 7.3 x
      10(-10)) which was previously associated with type 1 diabetes and systemic
      lupus erythematosus.
    explanation: >-
      Original GWAS association of IFIH1 with IgAD, noting the shared
      autoimmunity risk allele.
- name: PVT1
  association: Predisposing
  relationship_type: SUSCEPTIBILITY
  gene_term:
    preferred_term: PVT1
    term:
      id: hgnc:9709
      label: PVT1
  notes: >-
    One of four loci reaching genome-wide significance in the 1,635-case IgAD
    meta-analysis; a common-variant risk locus of small effect, not a causal
    gene.
  evidence:
  - reference: PMID:27723758
    reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Peak new variants (PVT1, P = 4.3 × 10-11; ATG13-AMBRA1, P = 6.7 × 10-10;
      AHI1, P = 8.4 × 10-10; CLEC16A, P = 1.4 × 10-9) overlapped with
      autoimmune markers (3/4)
    explanation: >-
      Reports the genome-wide significant association of PVT1 and the three
      other new loci with IgAD.
- name: CLEC16A
  association: Predisposing
  relationship_type: SUSCEPTIBILITY
  gene_term:
    preferred_term: CLEC16A
    term:
      id: hgnc:29013
      label: CLEC16A
  notes: >-
    A known general autoimmunity locus that showed suggestive association in
    the 2010 GWAS and reached genome-wide significance in the 2016
    meta-analysis.
  evidence:
  - reference: PMID:27723758
    reference_title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Peak new variants (PVT1, P = 4.3 × 10-11; ATG13-AMBRA1, P = 6.7 × 10-10;
      AHI1, P = 8.4 × 10-10; CLEC16A, P = 1.4 × 10-9) overlapped with
      autoimmune markers (3/4)
    explanation: >-
      Reports the genome-wide significant CLEC16A association in the IgAD
      meta-analysis.
  - reference: PMID:20694011
    reference_title: "Association of IFIH1 and other autoimmunity risk alleles with selective IgA deficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Variants in CLEC16A, another known autoimmunity locus, showed suggestive
      evidence for association (rs6498142C>G, P = 1.8 x 10(-7))
    explanation: >-
      The earlier, sub-genome-wide signal for CLEC16A that the later
      meta-analysis confirmed.
treatments:
- name: Antibiotic Therapy and Prophylaxis
  therapeutic_modality: SMALL_MOLECULE
  description: >-
    Treatment of intercurrent bacterial infections, and — in patients with
    recurrent infections — continuous or seasonal prophylactic antibiotics.
    This is the mainstay of active management in symptomatic SIgAD; there is no
    treatment for the IgA deficiency itself.
  treatment_term:
    preferred_term: antibiotic therapy
    term:
      id: NCIT:C15620
      label: Antibiotic Therapy
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      If the patient experiences recurrent infections, daily prophylactic
      antibiotics on a continuous or seasonal intermittent basis may be
      beneficial.
    explanation: >-
      States the indication and the two dosing patterns for antibiotic
      prophylaxis in SIgAD.
  - reference: PMID:27763681
    reference_title: "Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      There is no specific treatment for patients with symptomatic IgA
      deficiency, although prophylactic antibiotic therapy along with
      circumstantial immunoglobulin replacement with justification and
      supportive care (using a product that contains minimal IgA) could be
      helpful for patients with a severe phenotype.
    explanation: >-
      Confirms that management is supportive, with antibiotic prophylaxis first
      and immunoglobulin replacement only in justified circumstances.
- name: Observation Without Treatment
  therapeutic_modality: OTHER
  description: >-
    Asymptomatic patients — the large majority — require no treatment. What
    they do require is education about the transfusion risk and, in symptomatic
    patients or those with IgG subclass deficiency, periodic immunological
    review for evolution to CVID.
  treatment_term:
    preferred_term: supportive care
    term:
      id: NCIT:C15747
      label: Supportive Care
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      IgA-deficient patients who are diagnosed coincidentally and/or who do not
      have any symptoms do not need any treatment.
    explanation: >-
      States directly that incidentally diagnosed, asymptomatic patients need no
      treatment.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      However, awareness and education are of prime importance, particularly to
      prevent a potential anaphylactic reaction secondary to blood transfusion.
    explanation: >-
      Supports the education component that accompanies non-treatment.
- name: IgA-Deficient or Washed Blood Products
  therapeutic_modality: OTHER
  description: >-
    Where transfusion is required, the product should come from an IgA-deficient
    donor or be saline-washed red cells, and the patient should ideally be
    screened for anti-IgA beforehand. Patients with demonstrated anti-IgA are
    thereafter restricted to IgA-depleted or IgA-deficient products
    indefinitely. Medical alert identification is recommended.
  treatment_term:
    preferred_term: blood transfusion using IgA-deficient or washed products
    term:
      id: NCIT:C15192
      label: Blood Transfusion
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      The blood product should be prepared from an IgA-deficient individual, or
      saline-washed red blood cells should be the choice.
    explanation: >-
      States the two acceptable product options for transfusing an IgA-deficient
      patient.
  - reference: PMID:15679454
    reference_title: "Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Individuals with demonstrated anti-IgA are thereafter committed to
      receiving IgA-depleted cellular products or IgA-deficient plasma and
      derivatives to prevent recurrent severe reactions.
    explanation: >-
      Establishes the indefinite product restriction for anti-IgA-positive
      patients.
- name: Immunoglobulin Replacement (Restricted Indication)
  therapeutic_modality: OTHER
  description: >-
    Immunoglobulin replacement is NOT routine therapy for SIgAD. It is
    considered only where there is a concomitant IgG subclass deficiency or
    specific antibody deficiency, and then a product with minimal IgA content
    must be used to avoid sensitising or provoking a reaction in a patient with
    anti-IgA. Note that immunoglobulin products cannot replace IgA in any case,
    since they contain essentially none — the indication is for the associated
    IgG defect, not for the IgA deficiency.
  treatment_term:
    preferred_term: immunoglobulin therapy
    term:
      id: NCIT:C62710
      label: Immunoglobulin Therapy
    therapeutic_agent:
    - preferred_term: therapeutic immune globulin
      term:
        id: NCIT:C2701
        label: Therapeutic Immune Globulin
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      In case of associated IgG subclass deficiency and/or specific antibody
      deficiency, immunoglobulin treatment via venous or subcutaneous route with
      a product that contains minimal IgA may be given.
    explanation: >-
      Defines the restricted indication and the minimal-IgA product requirement,
      supporting the claim that replacement is not routine in SIgAD.
  - reference: PMID:18520152
    reference_title: "Progression of selective IgA deficiency to common variable immunodeficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Early diagnosis of this conversion and institution of immunoglobulin
      therapy is effective in preventing severe bacterial infections and
      pulmonary insufficiency.
    explanation: >-
      Supports immunoglobulin therapy as the treatment once a patient has
      converted to CVID, i.e. once the IgG defect is present.
- name: Vaccination and Vaccine Response Assessment
  therapeutic_modality: VACCINE
  description: >-
    Routine immunisation is given as normal. Assessment of specific antibody
    responses to protein and polysaccharide antigens is part of the diagnostic
    workup and identifies the subset with an additional specific antibody
    defect, which is the group in whom management diverges.
  treatment_term:
    preferred_term: vaccination
    term:
      id: NCIT:C15346
      label: Vaccination
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Evaluation of a suspected IgA deficiency would generally include a
      complete blood count with differential, quantitative serum immunoglobulin
      levels, serum IgG subclasses, specific antibody response to protein and
      polysaccharide antigens, and lymphocyte subsets.
    explanation: >-
      Establishes specific antibody response testing to vaccine-type antigens as
      part of the standard SIgAD evaluation.
diagnosis:
- name: Serum Immunoglobulin Quantification
  description: >-
    Diagnosis rests on quantitative serum immunoglobulins showing IgA below
    7 mg/dL with normal IgG and IgM, in a patient over four years of age, after
    excluding secondary causes including drugs known to lower serum IgA. The
    workup additionally includes IgG subclasses, specific antibody responses and
    lymphocyte subsets, plus testing directed at the associated conditions.
    Normal IgG and IgM are as much part of the case definition as the low IgA:
    they are what separate SIgAD from CVID and from the combined isotype
    deficiencies, and loss of IgG during follow-up is the event that
    reclassifies a patient as CVID.
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Immunoglobulin (Ig) A deficiency (OMIM 137100) is defined as decreased or
      absent level of serum IgA in the presence of normal serum levels of IgG
      and IgM in a patient older than 4 years of age, in whom other causes of
      hypogammaglobulinemia have been excluded
    explanation: >-
      The diagnostic definition, requiring normal serum IgG and IgM alongside
      the reduced IgA.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      The threshold of 4 years of age is used to avoid premature diagnosis of
      IgA deficiency which may be transient in younger children due to delayed
      ontogeny of IgA system after birth.
    explanation: >-
      Explains the age criterion in the diagnostic definition.
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      It would be prudent to take into account the medications that may cause
      decreased serum levels of IgA in the patient.
    explanation: >-
      Supports the requirement to exclude drug-induced secondary IgA reduction
      before diagnosing SIgAD.
differential_diagnoses:
- name: Common Variable Immunodeficiency
  description: >-
    CVID also features low IgA but with low IgG (and often low IgM) and
    impaired specific antibody responses. Normal IgG and IgM are what define
    SIgAD; a patient who loses IgG on follow-up is reclassified as CVID rather
    than as having two diseases.
  evidence:
  - reference: PMID:18520152
    reference_title: "Progression of selective IgA deficiency to common variable immunodeficiency."
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      Common variable immunodeficiency (CVID) is a primary antibody deficiency
      disease that shares many clinical features with IgAD.
    explanation: >-
      Establishes the clinical overlap that makes CVID the principal
      differential.
- name: Partial IgA Deficiency
  description: >-
    Serum IgA above 7 mg/dL but more than two standard deviations below the
    age-specific mean is termed partial IgA deficiency and is common; it is not
    the same entity and is not covered by this record.
  evidence:
  - reference: PMID:20101521
    reference_title: Selective IgA deficiency.
    supports: SUPPORT
    evidence_source: HUMAN_CLINICAL
    snippet: >-
      When serum IgA level is higher than 7 mg/dL but two standard deviations
      below normal for age, the condition may be referred to as partial IgA
      deficiency, which is quite common.
    explanation: >-
      Defines partial IgA deficiency and distinguishes it from selective IgA
      deficiency.
- name: IgG Subclass Deficiency with IgA Deficiency
  description: >-
    A separate IUIS Table 3 section 4 entity in which reduced IgA is
    accompanied by reduction in one or more IgG subclasses. By definition SIgAD
    has normal IgG subclasses; the combined entity carries a higher infection
    burden and is the group in whom immunoglobulin replacement is considered.
  evidence:
  - reference: PMID:35748970
    reference_title: "Human Inborn Errors of Immunity: 2022 Update on the Classification from the International Union of Immunological Societies Expert Committee."
    supports: SUPPORT
    evidence_source: OTHER
    snippet: >-
      IgG subclass deficiency with IgA deficiency Unknown ? Reduced IgA with
      decrease in one or more IgG subclass
    explanation: >-
      The IUIS row for the neighbouring entity, showing the IgG subclass
      reduction that distinguishes it from selective IgA deficiency.
discussions:
- discussion_id: sigad_hla_to_differentiation_block
  kind: KNOWLEDGE_GAP
  attaches_to:
  - pathophysiology#Failure of Terminal B Cell Differentiation to IgA-Secreting Plasma Cells
  prompt: >-
    What converts HLA class II haplotype risk into a block on terminal
    differentiation of IgA-committed B cells?
  rationale: >-
    HLA is the largest measured genetic risk factor for SIgAD and the GWAS loci
    are largely shared autoimmunity alleles, but no source connects either to
    the observed maturation arrest. The pathophysiology chain in this entry is
    therefore intact from the differentiation block onward and open upstream of
    it. Two further facts sharpen the gap: IL-21 restores IgA production from
    these B cells ex vivo, so the block is not irreversible, and 85-90% of
    people meeting the biochemical definition never develop disease, so
    whatever the mechanism is, it is not sufficient for clinical illness.
- discussion_id: sigad_asymptomatic_majority
  kind: KNOWLEDGE_GAP
  attaches_to:
  - phenotypes#Asymptomatic Presentation
  prompt: >-
    Why are the large majority of individuals with absent serum IgA
    asymptomatic?
  rationale: >-
    Two candidate explanations are on record and neither is settled. Serum IgA
    is measured and secretory IgA is not, so some individuals classified as
    IgA-deficient may retain protective mucosal IgA; and compensatory secretory
    IgM is increased in most but not all IgA-deficient patients. Resolving this
    would also explain why the same biochemical finding is incidental in a
    blood donor and disabling in a patient with bronchiectasis.
references:
- reference: PMID:20101521
  title: Selective IgA deficiency.
- reference: PMID:27763681
  title: "Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management."
- reference: PMID:27723758
  title: "Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency."
- reference: PMID:22291608
  title: "High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency."
- reference: PMID:20694011
  title: "Association of IFIH1 and other autoimmunity risk alleles with selective IgA deficiency."
- reference: PMID:24584841
  title: "Association between IgA deficiency & other autoimmune conditions: a population-based matched cohort study."
- reference: PMID:26739713
  title: "Risk of Infections Among 2100 Individuals with IgA Deficiency: a Nationwide Cohort Study."
- reference: PMID:18520152
  title: "Progression of selective IgA deficiency to common variable immunodeficiency."
- reference: PMID:3485858
  title: "Selective IgA deficiency in Japanese blood donors: frequency and statistical analysis."
- reference: PMID:15679454
  title: "Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products."
- reference: PMID:35604475
  title: "Inborn Errors of Immunity on the Island of Ireland - a Cross-Jurisdictional UKPID/ESID Registry Report."
- reference: PMID:35748970
  title: "Human Inborn Errors of Immunity: 2022 Update on the Classification from the International Union of Immunological Societies Expert Committee."
- reference: PMID:16007086
  title: "TACI is mutant in common variable immunodeficiency and IgA deficiency."
📚

References & Deep Research

References

13
Selective IgA deficiency.
No top-level findings curated for this source.
Selective IgA Deficiency: Epidemiology, Pathogenesis, Clinical Phenotype, Diagnosis, Prognosis and Management.
No top-level findings curated for this source.
Common variants at PVT1, ATG13-AMBRA1, AHI1 and CLEC16A are associated with selective IgA deficiency.
No top-level findings curated for this source.
High-density SNP mapping of the HLA region identifies multiple independent susceptibility loci associated with selective IgA deficiency.
No top-level findings curated for this source.
Association of IFIH1 and other autoimmunity risk alleles with selective IgA deficiency.
No top-level findings curated for this source.
Association between IgA deficiency & other autoimmune conditions: a population-based matched cohort study.
No top-level findings curated for this source.
Risk of Infections Among 2100 Individuals with IgA Deficiency: a Nationwide Cohort Study.
No top-level findings curated for this source.
Progression of selective IgA deficiency to common variable immunodeficiency.
No top-level findings curated for this source.
Selective IgA deficiency in Japanese blood donors: frequency and statistical analysis.
No top-level findings curated for this source.
Review: IgA anaphylactic transfusion reactions. Part I. Laboratory diagnosis, incidence, and supply of IgA-deficient products.
No top-level findings curated for this source.
Inborn Errors of Immunity on the Island of Ireland - a Cross-Jurisdictional UKPID/ESID Registry Report.
No top-level findings curated for this source.
Human Inborn Errors of Immunity: 2022 Update on the Classification from the International Union of Immunological Societies Expert Committee.
No top-level findings curated for this source.
TACI is mutant in common variable immunodeficiency and IgA deficiency.
No top-level findings curated for this source.